My husband has just received the above diagnosis following a liver biopsy. Following a MDT meeting at our local hospital he has now been referred to a specialist centre, so now have to wait for another MDT. We are constantly been told its a waiting game but I keep taking them its not a game. My husband is going downhill rapidly, he is unable to eat & hasn't had anything for 2 weeks, drinking is also difficult. Feel like he had been given this news then just dumped. Keep trying to chase things up but keep getting nowhere. Feeling devastated and so alone, I feel if he isn't seen soon he won't be here.
I'm so very sorry to hear this devastating news hon.
What an absolute shock for you and your family and friends. I'm sure you are feeling numb right now and that's a good thing- the minds way of coping. You both had such a short time to absorb the news of his illness and cope with all the medical stuff plus the lack of speed, care and attention from all the medical staff.
My heart is broken for you and I'm sorry that I couldn't just rush round and help you both. Feeling so helpless, like you probably did, is hard. I know from the few conversations we had that you were with him every step of his journey, by his side and fighting for the right attention for him. Your strength and love I'm sure was evident to him every day my lovely.
If you can please remember it really is the depth of caring and love that that you showed him in that short time and not the length of time he was ill that was important.
(T️he fact that it all happened so quickly remains as does the lack of care but that's for another day. When, and if you want to, dealing with complaints it may well be worth ringing Macmillan for some advice re how to go about doing this. )
Please accept my heartfelt love and thoughts right now, let yourself be supported and helped by others so you can carry out all the tasks that lie ahead. Take time out now and then just to be mindless and sit or walk. Take time to think about all the time, love, laughs, journeys, quarrels, jokes and shared incidents that you both shared- good and not so good(ie: normal life!) Cry and laugh, be angry, be sad be anything you feel as there are definitely no rights and wrongs for grieving .
I'm here if you need to talk either in here or private message. Thinking of you xxxxxx
