I need to decide whether or not to have a SLNB

FormerMember
FormerMember
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Hi. 

I've had a stage 1B melanoma removed from my sscalp. It was 0.8mm deep, in the first layer of skin only. There is a 10% chance the cancer has spread to my lymph nodes, 90% chance it hasn't spread at all. I need to decide if I want the sentinel lymph node biopsy done on my temple, behind my ear, my neck and face to confirm if cancer has spread or not.

I am due to have a wide level excision procedure where the melanoma was previously cut. I have to choose whether or not to have the biopsies done straight after.

The decision should be easy but, I'm getting married in February and I've just started a new job as a teacher in a special needs school. The surgeon has told me the pathologist needed to do several tests to confirm the lesion was a melanoma, another pathologist may have decided it was non-melanoma. His personal opinion would be to not go through the pain and invasion of the biopsy when it's such a high chance that nothing will be found. But said it all depends on if I want to live with the unknown for the next 12 months. 

Has anyone gone through this procedure already? How invasive is the sentinel biopsy in these areas? How was the healing process straight after surgery?

Or has anyone decided against the biopsies???

I don't know how to make this decision. Do I find out for certain? Or do I take the relatively good odds and hope for the best over the next 12 months? 

Aussie 

  • Hi , my SLNB was at my ear also . 4 tiny nodes were taken away the scar runs from the top of my ear to the bottom of my ear. 5 months later the scar is not visible at all, the surgeon at the time to me this is the kind of scar people who have had face lifts have Rofl. After surgery I felt a little in balanced for a few days but that passed quickly. 

  • FormerMember
    FormerMember in reply to Amccl

    Hi, thank you so much for your reply. I'm in total shock stage and haven't known what to do or what to expect. I really appreciate you taking the time to share your experience. I'm glad your scar is not visible after 5 months. When I had the initial excision on my scalp to remove the melanoma, I was not expecting the face lift look on one side! I could understand why people get work done after seeing the difference Wink 

  • Please read me story if you wish like you in total shock and 7 months after hearing the word melanoma I still feel shocked to the core.  Mines was 2.5mm so bigger than yours for me I am a worrier so I felt I needed the SLNB , unfortunately 2 of my tiny nodes had tiny traces of melanoma x I am 2 doses into immunotherapy treatment ( getting pembro as a preventative medicine ) and everyday I wish this was not happening to me but it is and I am trying to be positive and focused ! X 

  • FormerMember
    FormerMember in reply to Amccl

    I'm such a worrier too. But I must say, after reading many forums and threads in these last 2 hours, I'm not feeling so alone. I'm learning so much from everyone else, I haven't been able to ask any questions during my 2 appointments as I keep going blank.

    I've been told about immunotherapy. I hope it's working well for you. I will read your story, and I'm sending you bucket loads of positivity and strength. Xx

  • Keep positive though yours is very small so let’s hope that there is no spread and immunotherapy will not be needed. Do not over read though ( I over read and over googled and had myself in a terrible state ) x 

  • FormerMember
    FormerMember in reply to Amccl

    XO

  • I have recently been diagnosed with a 1.5mm melenoma. I also got diagnosed with heart failure in the same week. I am having the wider excersion next week but have decided not to get the lympth node test cos of my heart condition. I don't know if this is the right decision. So like you not sure what to do 

  • Hi SadlerJ.

    The decision on whether to have a SLNB is obviously a personal one, however I would point out that in my case (and my original lesion was much thicker than yours), the test highlighted the spread of the disease and therefore dictated the best course of treatment.

    The SLNB sounds complicated (nuclear medicine, etc., etc.), however, and again in my case, was a relatively small operation and less intrusive than the WLE.

    Only you can make a decision that you feel happy with, however don't discount the knowledge that all tests available have been used to establish (hopefully), that there's no spread of cancerous cells....

    Best wishes and good luck for the future.