I found out last Tuesday the I have melanoma following the excision of a suspect little lump on my upper right arm 3 weeks ago.
Was a bit blindsided as two GPS thought is nothing and the dermatology consultant and surgeon both thought it was a BCC.
I was to be discussed at their team meeting on Friday but was told I'm being referred to another further away hospital to plastic surgery for a wide local excision, lymph node biopsy (if I opt in) and they were still to decide if I'd get a full body CT scan.
I wasn't told a stage (and I didn't know to ask) but was told I'd have skin checks for the next 5 years.
I really hate this limbo time waiting for a appointment and worrying that's its spread. Reading all your stories and feeling therefore less alone with my situation is really helping though.
My full story is on my bio for anyone who'd like to read it.
Hi x I had my wide excision Nearly three weeks ago , I also had a sentinel node biospy. I am awaiting the results of this still another week until my appointment. Like you I hate the being in limbo and worrying that it’s spreading. I was also told I would have check ups for the next 5 years. The stage then told me was stage 2a ( mines was a 2.5mm melanoma on my eyebrow ).
Hey Amccl
Thanks for responding. It helps to see a photo of yours and it look quite like mine as they told me even after my results that it didn't look like a typical melanoma.
I hope you're healing up well after your surgery and not stressing too much while waiting for your results? I'm stressed enough just waiting to hear about an appointment for my WLE. Its frustrating as it's the school summer holidays but feel I can't book any day trips etc till I find out what's happening.
I called and spoke to my consultant again his morning as it was bothering me that I wasn't told my stage. She said my tumour was 1.7mm thick but because my lymph nodes didn't feel swollen it's puts me at stage 1B.
Please let me know how you get on at your next appointment. Will keep everything crossed for you.
Mack x
I feel exactly the same with the school holidays I can’t focus on anything apart from next Monday for my appointment. The waiting I have found very difficult.
I was obsessed with trying to feel lymph nodes all over my body ( actually making myself sore with all the pocking at them). The sentinel nodes they have Took away are at my ear area so the scar is well hidden by my hair.
thank you so much for thinking about me x had a rough night every scenario has gone through my mind x
Oh I cannot stop
crying it’s been an awful day xx
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007