Hi all, 61f diagnosed 3 years with about 5 subcutaneous melanoma. Went on a clinical trial with Christie hospital at Manchester. Had some immunotherapy which may may ill so then used dab and tram. Had 3 years of ned
,was working at the NHS as echo tech during covid. Then at off the blue (all ct scans had been clear) I got symptoms like a stroke, lost speech at bit, so into hospital, mri showed I had a haemorrhage with so masses. Anyway dab and tram stopped, with steroids started. So after 4 days left hospital, but then 4 days after had a seizure (bit scarey for husband) went back to hospital, had another seizure, another mri which seemed to show masses had grown.
So now out of hospital, on anti seizure meds and reducing steroids. Been told not suitable for surgery or radiation. Going to oncology appointment at christies on Monday to see if immunotherapy available.
Husband and 2daughters brilliant. Had support from macmillians palative support (St Anne's hospice).
Gp a bit wishy washy.
So here's to the future, got to try and look on the bright side. Got a allotment which I love. Love the football, Leeds United fan.
Was originally from West Cumbria but now live in Salford
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