Pembrolizumab treatment

FormerMember
FormerMember
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I’m about to start this treatment as a precaution for a recurrent melanoma. Is anyone on this single treatment and how are the side effects? 

  • yes please details of this would be lovely. I know there is a Facebook group called melanoma mates but I am not on Facebook to access this. 

  • FormerMember
    FormerMember in reply to Amccl

    Absoluteley. I have 2 Tumours, one near my spine and one on my right lung and the last 4 scans (every 6 months) they cant see them and I've had no new tumors. This is the best result we could have hoped for after getting the diagnosis. This is due to the Pembro

  • FormerMember
    FormerMember in reply to FormerMember

    Sorry scans are every 3 months

  • FormerMember
    FormerMember in reply to Amccl
    [deleted]
  • FormerMember
    FormerMember in reply to FormerMember

    I will be on this Thursday, and will miss next weeks due to holiday.

  • @Kdon24 oh my lord this is amazing!!! Wasn’t sure how often I will be scanned will ask this question  the next time am up ( 6 weeks time ). 

    THank  you for this link 

  • FormerMember
    FormerMember in reply to Amccl

    You're welcome, you're not alone and there is Hope

  • the two choices for me were pembro for the year or no medicine n be scanned for year to check nothing else appears.

    I would rather be pro active and be seen to be doing something to give me a better chance of this never coming back. Counting down the 9 treatments and praying for the best. 

    hoping to continue with a relatively normal life with work / life balance etc. 

  • I was diagnosed with Stage 3c wild melanoma back in November of last year and after a wide excision in the middle of my back and sentinel node removal, I began pembrolizumab treatment via cathport in January 2021. Another lump was located after I had undergone 5 cycles of tri-weekly Keytruda and my treatment was suspended while I underwent a complete lymph node removal of my left armpit (axillary).

    I was given the all clear to resume treatment a few weeks back and had my latest course on 13th August which was my first cycle for 4 months and as of next Friday (3rd Sept), I'll start doubling up the treatment and be infused every 6 weeks. The 'new' lump was in situ prior to the immunotherapy treatment so it wasn't a reflection of the drug not working but perhaps not working 'quick enough'. 

    As others have said, the main side effect is the lethargy for a few days immediately afterwards. It's like I'm losing power and when I plug myself in, I'm only charging up at 1% an hour so it takes a while before I resemble myself again. I'm 54 (next month), 110kg (17 stone in English) and 6 feet 5 inch tall so not sure if my 'mass' has a bearing on my tiredness post-treatment although I have lost 3 stone (healthily by changing diet and upping my exercise) since I began treatment in January. 

    I also get given anti-sickness tablets by the hospital post-treatment as I do have initial pangs of nausea and the odd mouth ulcer / gum boil rears its head in the immediate days after treatment but in comparison to a lot of other treatments, I feel it's small cheese to contend with considering the positives and advantages of the treatment. 

  • Thank you for your info. I am working hard on being positive and feeling better each day. The list of side effects terrifies me  x