I’m about to start this treatment as a precaution for a recurrent melanoma. Is anyone on this single treatment and how are the side effects?
yes please details of this would be lovely. I know there is a Facebook group called melanoma mates but I am not on Facebook to access this.
Absoluteley. I have 2 Tumours, one near my spine and one on my right lung and the last 4 scans (every 6 months) they cant see them and I've had no new tumors. This is the best result we could have hoped for after getting the diagnosis. This is due to the Pembro
I will be on this Thursday, and will miss next weeks due to holiday.
@Kdon24 oh my lord this is amazing!!! Wasn’t sure how often I will be scanned will ask this question the next time am up ( 6 weeks time ).
THank you for this link
the two choices for me were pembro for the year or no medicine n be scanned for year to check nothing else appears.
I would rather be pro active and be seen to be doing something to give me a better chance of this never coming back. Counting down the 9 treatments and praying for the best.
hoping to continue with a relatively normal life with work / life balance etc.
I was diagnosed with Stage 3c wild melanoma back in November of last year and after a wide excision in the middle of my back and sentinel node removal, I began pembrolizumab treatment via cathport in January 2021. Another lump was located after I had undergone 5 cycles of tri-weekly Keytruda and my treatment was suspended while I underwent a complete lymph node removal of my left armpit (axillary).
I was given the all clear to resume treatment a few weeks back and had my latest course on 13th August which was my first cycle for 4 months and as of next Friday (3rd Sept), I'll start doubling up the treatment and be infused every 6 weeks. The 'new' lump was in situ prior to the immunotherapy treatment so it wasn't a reflection of the drug not working but perhaps not working 'quick enough'.
As others have said, the main side effect is the lethargy for a few days immediately afterwards. It's like I'm losing power and when I plug myself in, I'm only charging up at 1% an hour so it takes a while before I resemble myself again. I'm 54 (next month), 110kg (17 stone in English) and 6 feet 5 inch tall so not sure if my 'mass' has a bearing on my tiredness post-treatment although I have lost 3 stone (healthily by changing diet and upping my exercise) since I began treatment in January.
I also get given anti-sickness tablets by the hospital post-treatment as I do have initial pangs of nausea and the odd mouth ulcer / gum boil rears its head in the immediate days after treatment but in comparison to a lot of other treatments, I feel it's small cheese to contend with considering the positives and advantages of the treatment.
Buck2Basics Thank you for your info. I am working hard on being positive and feeling better each day. The list of side effects terrifies me x
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007