BCC Nerve invasion

Grinch 1 month ago

3 replies
58 subscribers
241 views

Good afternoon all.

Hope everybody is keeping well.

Firstly i got diagnosed with stage 3b Melanoma in October 2024.

I also had like a funny scab on the side of my forehead and after a long time i was told it was a BCC, which i wasn't too worried about.

On November the 7th i had the BCC removed and yesterday i got a follow up call.

I thought the follow up call was just to see how things were looking with my scar etc.

The nurse said to me that the BCC had been fully removed, but there is a possibility i could have nerve invasion, i had no idea what she meant.

After asking her what it actually meant i thought bloody hell it does not sound good at all.

Now i will not find out until after Christmas what the outcome will be, i wish she would have called after Christmas, as this has now ruined my Christmas as it is on my mind constantly after reading up on the prognosis of nerve invasion.

She did ask if i could lift my left eyebrow which was no problem, no idea if this made any difference at all.

Nerve invasion sounds very scary :-(

Sorry, just had to get this out there.

Thank you.

Simon

latchbrook 1 month ago

Hi Simon/Grinch

Long time no speak and I'm sad that you have a new worry after coping well with your earlier melanoma diagnosis.

I have never heard of "nerve invasion" and, unfortunately, couldn't find any posts in the group which mention it.

It might be worthwhile to join the skin cancer group, as you'll find lots of people with BCC there, and someone there may have experience with this. If you'd like to do that, clicking on the link I've created will take you straight there.

Anne

"Never regret a day in your life, good days give you happiness, bad days give you experience"

Grinch 29 days ago in reply to latchbrook

Hi Anne

Lovley to hear off you.

After the call Salford Royal where I had the op and got the call on 19th December saying I could possibly have nerve invasion, I made a few phone calls.

I called Salford Royal to try and get some answers, but to no avail, thd secretary was trying to be very helpful though.

After this I emailed the 3 oncologist nurses I am under at the Christie.

They were so so helpful, and late on Friday I got a call off one of them who apologized for only just getting back to me.

The nurse who called me from the Christie said that they don't really get involved with Basel Cell Carcinoma so she wanted to dig a bit further by calling Salford Royal.

She said that she had spoken to one of nurses who knew about it.

The nurse she spoke to at Salford Royal said two teams will be getting together to discuss whether to do another op to sort the possible nerve invasion out if I have it, but not to worry if I do have it as it isn't life threatening.

So i will just wait until I hear off them now which will be approx 9th Jan 2025.

Just wish that the 1st nurse would not have called on19th Dec as it has sort of tarnished Christmas a tad.

The nurses at the Christie go above and beyond they are brilliant.

Anyway Anne, i really hope you are keeping well and I hope you have a lovley Christmas and a happy and peaceful new year.

Take care.

Simon x

latchbrook 28 days ago in reply to Grinch

Hi Simon

Yes, all good here thanks.

It's a pain to have to wait until 9th January before you know more and I can totally understand your wish that the first nurse hadn't mentioned anything.

I'll keep my fingers crossed that you don't require any further surgery.

Have a lovely Christmas and New Year

Anne

"Never regret a day in your life, good days give you happiness, bad days give you experience"

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