Has anyone had a blood clot?

Hi Pip93 

I can understand your worry that your mum's blood clot is as a result of her melanoma or of the treatment. I don't have any personal experience to share with you but I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list where it'll be easier for others to spot.

I'll be keeping everything crossed for a non-cancerous result tomorrow.

((hugs))

Hi Latchbrook,

Thank you, I really appreciate you responding. We're all a little jittery tonight but trying not to let our imaginations run away with us. Whatever news we get tomorrow, at least we'll be able to get a treatment plan and move forward. In my experience so far, waiting for results is the worst part.

I've done a bit of research on blood clots and melanoma, and it seems like it's not a cancer that typically causes them, so we're hoping that it's coincidental - or maybe because my mother had surgery in summer. Either way, I'll update once we have the results from the CT scan in case anyone on here is ever looking for similar information.

I'm just posting an update. Unfortunately, we've had some pretty bad news today. My mother's melanoma has returned for the second time this year, but this time it has spread all over her body, including three lesions in the brain. The news has hit us very hard, but we have a good treatment plan. She will be receiving targeted radiotherapy to deal with the tumours in her brain, which has a 90% success rate. Next week, she will move onto immunotherapy, Ipi/Nivo, and we've been told there is a 60% chance that she will respond, in which case we will have her for years potentially. If she doesn't respond to treatment, we're looking at three to six months.

They couldn't confirm that the blood clot was caused by the melanoma, but they said it is common with cancer patient. Very sad day, but we have a lot of hope still, and we're not giving up.

I was very sad to read your update Pip93 but it sounds like your mum has a great team around her who are going to do their best.

As you said, there is always hope and there are many people across all the cancer groups within the online community who have gone on to live long lives despite recurrences.

Make sure you take care of yourself and don't forget you can always speak to the people on the Macmillan Support Line to get further support. They are available every day of the week from 8am to 8pm and will always provide a listening ear as well as advice.

Thank you, Latchbrook. I really appreciate that. The team is great, especially my mum's specialist nurse, and they've said she's in a good position because bizarrely she's in really good health. Her organ function is great across the board, so we're definitely staying hopeful and positive. And if the worst does happen, we're going to try and make sure we have a really good time as a family and make lots of wonderful memories if we can.

This is such an awful disease, but I've read so many inspirational stories on here and shared them with my mum, and these forums have given us a lot of comfort. I hope in time her story will help somebody else.

Thanks again x