Working and reasonable adjustments during immunotherapy treatment period

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Hi I was just wondering if others had any experiences of how to ensure your employer understand how to support you at work during treatment for immunotherapy. I feel like my Managers are supportive in words however are wanting to be able to "manage" my side effects and "build a pattern" of how i am after treatment to know how i will be going forward. I don not seem to be able to make them understand that it can change at any given time with no warning and I or anyone cannot predict how my next day or week will be and I just need flexibility.  

Just looking for any helpful reasonable adjustments others may have been able to incorporate that I may not have thought about. I am lucky that I already work from home and can do my job quite flexibly it just feels like Managers want a nice neat box of how many hours over which days I can work over next 12 months.

Thanks 

  • Hi there, I have just started pembro for a year and have asked for reduced working hours. To be honest I felt my employers didn't understand the seriousness of skin cancer, they asked me for a letter from the hospital which I got stating that I had stage 3 melanoma and the treatment was for 1 year, most common side effect being fatigue which would impact daily and work life as well as other potential serious side effects. Once they had the letter I think they finally realised how serious it was. This has all really impacted my mental health too so I felt the need to highlight that also. Good luck, I know how stressful this is. 

  • Hi there, like the previous poster I have changed my working days down to 3 as a lifestyle choice because of the cancer diagnosis.  I have agreed a 3 day week flexible days, on prior agreement with my manager.  I have my usual arrangement (Tue/Weds/thurs) in my email footer.  I don't get any side effects from treatment (immunotherapy = nivolumab).  Only my LM and 2 up know of the cancer.  Sometimes when I have an oncology appt I may make that a non-working day because I want to incorporate other things into the trip.  But like you say, events happen.  In this scenario the employer would be expected to react like any trip to A&E by an employee, or care responsibilities, or children's illness etc.  I have heard some shocking responses from employers on this forum - all well meaning perhaps but unnecessary and adding extra burden to the person with cancer.