Lymph node removal

Hello Jac14,

Yes I too have had awful delays. I eventually go my WLE and SNLB done after waiting 13 weeks. My cancer is Stage 2B. The operation was completed just over 2 weeks ago. The difficult thing now is they have told me they are behind in processing the results of the SNLB and they said it could be 6 to 8 weeks. Even my 3 month check up has been cancelled twice and that means it will be over 4 months.

Like you, I am worried that if it has spread I should have been getting treatment months ago. I have heard of people being processed very quickly through the system so maybe the delays are in isolated pockets of the country. I live in Leicestershire and have been going to Loughborough and the Leicester Royal for my appointments. I did ask when they told me about the initial delay for surgery (at that point I was told it would be 8 weeks) if it was possible to have it done at a different hospital and was advised that they all have long waits.

I must admit however nice and efficient the doctors and nurses are when I am at an appointment I do feel very let down by the long wait times and it certainly adds to the anxiety. The other thing I am finding difficult to deal with is not being able to plan holidays. 

When you do get sorted I hope that you will have good results and no harm will have been done by the delay.

Claire

Hi Claire129,

The waiting really is the worst thing. I waited 8 weeks for results of slnb and was a wreck.

I hope your results are good when you finally get them. 

Now I'm just hoping it's 3rd time lucky for my surgery next week. I know these things do happen and can't blame anyone but I am feeling angry about it. I too feel frustrated about not being able to plan things.

Take care x

Let’s think positive, surly they won’t let you down again. Keep me posted how you get on.

Hi Claire, just wondered how you're getting on? Have you had any results yet?

I finally had lymph node surgery on Friday 19th. It was a relief not to get sent home again.  Very sore and tired but definitely feeling better this week. Hopefully results in 4 weeks, surgeon did tell me they didn't find anything untoward so hopefully good news!

Then I'll probably have another scan and start on 12 months of treatment. Have booked a holiday for February so looking forward to that! 

Xx

I am so glad that they got your sorted at last, what a performance!  I am keeping my fingers crossed that you get results in 4 weeks and they are all clear. They have already warned me that it could be 6 to 8 weeks for my lymph node feedback. That seems to be a similar wait to yours.

I am over the soreness now from my operation but did have an infection which needed a couple of courses of antibiotics and I found it very difficult at the beginning to interact with the scar. My husband had to apply the cream for quite a while as I had a real repulsion to it. I am over that phobia now thank goodness. it is very ugly but does get a little better each week.

I am please to hear that you have been able to book a holiday, it is nice to have something to look forward to. As soon as I get my results which I am sure will be good. (ever the optimist ) I will get something booked.

It sounds like you will be having treatment regardless of how the additional nodes test. I think I should be able to avoid further treatment if the lymph nodes are ok.

Wishing you well and keep me informed of progress.

Claire