Eye vision problems

Hi Dicksie

I'm sorry to read that you're suffering from Uveitis as a side effect from Nivolumab.

I noticed your post hadn't had any replies yet so I'm tagging Reid06 into my reply as they have posted on a couple of occasions about suffering from this condition too. Hopefully they'll pop on and tell you about their experience.

x

Hi Latchbrook

Thanks for your reply and for tagging in somebody with a similar experience.

x

Hello ! Yeah I am now have chronic uveitis after having on a number of occasions . I am on steroid tablets as oppose to the drops . I’m still on my target therapy as I was took off the nivolumab last year ( for different reason ) but I did have my dose lowered to try and combat it . I see a uveitis specialist at the eye hospital now . She’s always optimistic on options that don’t Interfere with treatment . I don’t suffer in pain anymore but my vision is poorer

Hello. Thanks for your reply. Did you continue your treatment when your uveitis flared up? Mine is postponed for a month whilst I am taking steroid drops 6 times a day to reduce the inflammation at the back of my eye. I am worried that when I restart the nivo that it could re occur or my other eye could be affected. I am quite shocked that I have lost some vision so quickly and don’t want it to get worse x

Hello . Yeah I did, but all treatments I’ve been on I’ve suffered from this. This is the longest I’ve stayed on a treatment alongside managing it . It’s been trial and error with the dose of steroids and my tablet dose . I’ve responded well to my meds so I guess they are reluctant to stop treatment. I guess depends on how bad your vision is ? I’ve been at the eye hospital today actually and they’ve put me on the steroid drops alongside steroid tablets . Are you seeing a uveitis specialist ? I found that’s helped as oppose to just a normal ophthalmologist ? 

Hi there. Sorry for my late reply and thanks for all the info. At the moment my treatment is still halted on the advice of my consultant ophthalmologist who I see again on August 31st when my course of steroid drops finish and my vision will be tested again. I do feel that my vision is better but I have also had more side effects from the therapy. I had  my CT scan last week so that will show if the treatment is working I suppose. Dealing with melanoma seems to be an uphill struggle at the moment but I will follow advice and see what is recommended.

cheers

Hello - sorry for the delay I’ve been having issues posting . I see you’re seeing the doctor tomorrow - fingers crossed for you . I’ve seen a difference since the steroid tablets although it’s a bit up and down and trial an error with them . I hope your other side effects aren’t too bad . I had a terrible time last year but definitely feel like I’ve turned a corner . It is difficult at times though . I hope you get good news from your scan , come back and let us know !