Hi , well I’m 8 weeks on from my groin dissection , still in pain but being kept an eye on .
I started back to work today half days my leg hurts and it’s a bitter sweet feeling of wow there is some normal to a day and my mind can work without every second thinking of cancer but then my leg is hurting and I have a week full of the reality of hospital appointments.
I as totally shocked I’m Braf positive and had researched in prep for my treatment options thinking as id had no primary abd one lymph only out of six taken as positive so I don’t feel very prepared now I’m Braf positive , too many treatments available which is of course fortunate but confusing .
I think I prefer the Pembro 3 weekly route was anyone offered this and what was your staging .
thanks In advance .
Hi Jac, hope you are keeping OK. My biospy was clear which really surprised me as I had then found a lump, I'm meeting the oncologist tomorrow to finalise the treatment. Is the braf more aggresive do you know? I read that it was a good thing as the treatment worked well but then in another place I read it wasn't good if there was lymph node involvement 
lots of questions for tomorrow but I think I'm getting the dab tram targeted therapy. Hope you do OK on it, good luck :))
Hi Jac, so glad to hear you are not doing too bad so far on your treatment. They offered me either targeted or immunotherapy and really didn't say there was much difference and weren't advising me either way. I'm so confused! Why did your oncologist prefer targeted? I'm leaning more towards the immunotherapy as I think I will struggle taking the tablets if I have the side effects. Also the not eating in the evenings would be a real struggle for me 
I've been comfort eating way to much recently 
Hi Clayoh,
Both treatments were explained earlier on in the year to me, and one of the nurses at some point mentioned that immunotherapy could be kept as ammunition incase I needed any further treatment down the line. Something along those lines anyway. I didn't question it really. They sent me away with information about both but think I had the idea in my head that taking tablets would be much easier and that side effects with tablets might not be as bad. Whether this is right I don't know, suppose each will affect individuals differently. Then when I saw the oncologist after lymph node surgery he didn't really mention immunotherapy, so just went with the tablets as I just wanted to get started on it and no more delays.
One thing I've never lost throughout the last 12 months is my appetite! I've slightly altered the times I take tablets, (usually 7am and 7pm) as was told approx 12 hours in-between doses so I guess an hour each way will be OK. I'm going out this afternoon for a few hours so might be more difficult, I'll have to set an alarm on my phone so I don't forget to stop eating/drinking!
Do you know when your treatment will be starting? Or have you been given more time to decide? You just want them to tell you which to do don't you. It's like, just give me what works best! I think they're both supposed to be very good but just work differently.
I'm sure you'll make the right decision for you. Let me know what you decide and how you get on. Fingers crossed no side effects 
