Hi All,
I just wanted to post an update on my journey as an encouragement to others as I know it helped me in those dark places just after diagnosis.
I’ve had a near 7 year journey with this disease from the prime being misdiagnosed then finally removed too late in 2015, a left neck lymph node clearance & radiotherapy, a spread to my lungs, targeted therapy for nearly 3 years then a recurrence in my lungs 2 years ago at the start of lockdown which led to immunotherapy.
I had one dose of dual immunotherapy in March 29 before Covid risks meant it was followed by 3 doses of Nivo only before I had to stop due to side effects (stomach bloating).
I was fortunate to have a strong response, with reducing nodule size in the June 20 scan, only traces in Sept 20, and a complete response in Mar 21. Aug 21 showed on ongoing complete response, as has my latest Mar 22 scan.
I’m by no means out of the woods yet, as I need to get to 3 years clear before the risk of recurrence further reduced. Yet it’s as good as it can be at this stage and I hope this can encourage others in darker parts of their battle.
