Afternoon forum.
today received my test results , came back as melonoma in situ. Glad I managed to get it very early. Just wondering as had nodular melanoma 2 years ago is there anything extra I should ask my consultant.
kind regards
andrew
Hi Andrew, I was diagnosed with nodular melanoma 3C 4yrs ago this summer. The primary lesion had a breslow of 8mm and was BRAF positive. Ive had 3 further recurrences and I’m currently on targeted therapy.
Have they tested the biopsy to see if you’re BRAF positive? Do you mind me asking what stage you are and the treatment you’ve received to date?
I’ve not met anyone who has been diagnosed with nodular melanoma so I’d be keen to stay in touch with you if that’s ok?
All the best Jules
Hi jules
First melonoma appeared 2 years ago . On back / polypoid invasive nodular melonoma with adjacent superficial spreading melonoma . Was diagnosed stage 2A , berslow 1.6mm ,extensively ulcerated, had a 2cm wide excision with slnb that came back negative. Just 3 monthly checks.
Just been diagnosed with in situ melanoma on abdomen, Waiting for 5mm wide excision.
never had brag testing.
regards
andrew
Hi Andrew, I live in Wales where melanoma patients do not receive adjuvant immunotherapy therapy until you reach stage 3 after which time the melanoma has already spread to the lymph nodes. As you are not stage 3 they may not have tested you for the BRAF mutation but it might be worth asking the question. It just means that you could receive other targeted therapy treatments if your melanoma should spread to your lymph nodes. At stage 2 they tend to excise early with the aim of removing everything before it’s spread further. I’m sure that’s happening in your case. Good luck and keep me updated if your progress.
jules
Hi jules, the only thing that bothered me was polypoid nodular is a variant where a lot of the cancer cells are above the skin in a polypoid. So when they do the depth it’s only from base of polypoid. Also it came about in 6 weeks.
regards
andrew
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