Hi
My wife received dx of MM in Nov 20. Wider excision biopsy never happened (covid delays?) and tumour grew back into scar tissue of the initial excision biopsy. Confirmed MM again Jan, 21. Since metastasised into lymph nodes, both lungs and spine (confirmed Friday last week).
She had bloods done Friday ahead of starting immunotherapy hopefully wc 15/3. However, on call med reg rand yesterday morning to say that she needed to go straight in as bloods had showed really high levels of calcium.
She was admitted yesterday. Nobody is really telling me anything (she cant be bothered with text/calls as feels unwell), I understand that now looking to bring start of immunotherapy forward. Can anyone here give an idea of what increases in calcium might mean. In my head, it will mean even more progression. Cant visit, cant get more info, This is horrendous
Hello , I’m so sorry to hear how you’re feeling at the moment, it really can’t be easy feeling that you need more info and it being hard to get it. I haven’t had high calcium levels so I can’t give you personal experience of that. I hope someone who has might come forward or that you feel you could perhaps use the ask a nurse section for info or the Macmillan telephone support line. They may be able to help with general info and what questions to put to your wife’s team.
Below Ive put the link to the ask a nurse section, in case that’s a new area for you, and I hesitated but have included a link for high calcium in people with cancer, which you’ve indicated you think it might be, but I’m sure they will be investigating if there is a different reason.
https://community.macmillan.org.uk/cancer_experiences/ask_the_expert/ask_a_nurse
I’ve had a few blips during my treatment and I’m still on immunotherapy. I hope your wife is feeling reassured that she’s in good hands in the hospital and that they will investigate the cause and give her the best treatment while they keep a close eye on her in hospital. The link continues to say what that treatment may be. The immunotherapy is a systemic treatment so treats melanoma cells where ever they are so I hope it works it magic for your wife. I often think the other half gets more anxiety than the patient, there’s another group that may help you through this weird period of not being able to visit. I will put a link incase you feel it may help to talk to others going through that aspect of things.
https://community.macmillan.org.uk/cancer_experiences/carers-only-forum
I hope things will quickly improve for you both.
Take care KT
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