How did it spread so fast?

Hello , I am so sorry to read about your stage 4, and how frail you have said you are. I too when I was diagnosed 5 years ago was told I was at that time too ill for treatment and my melanoma was only in lymph nodes extensive but only in my abdominal and pelvic ones  but they put me on steroids and reviewed me again a week later, and a again the week after that and I started on a targeted therapy. I appreciate that your burden of disease is more, and you sound like you have come to terms with things, I’m just finding it a bit difficult reading this, it must be a difficult decision weighing up risk of trying immunotherapy which treats the whole body, but can have side effects that a weak body can not cope with. I imagine the thought is that it could accelerate nearing the end, and not having treatment can in some awful circumstances be the best option, it’s must be difficult for you to hear and I am so sorry. I saw that you have joined the living with incurable cancer group, the group are incredibly supportive, some have had an incurable diagnosis for many years and been on palliative treatments and have gone through the admin and emotional side of things and are still here, and at the moment unfortunately there are some long timers (different cancers) who are facing the transition from having had their last treatments to pain management and care in a hospice or home. They use the space for coming to terms with things and for keeping in touch with the friends they have made on this site through sharing their experiences and supporting each other.

I am a member of that group to and might see you over there? I hope so.

Take care

Hi , I was just rereading things and wanted to wish you a happy birthday, I m not sure if it’s coming up soon or if it has just passed as I didn’t know when you wrote your profile.

I’m not big on celebrations but they are a time for me to reflect on what’s going on, and I’m thinking that might be / have been especially hard this time for you. I just wanted say I’m thinking off you.  

Thank you KTatHome. My birthday was a couple of weeks ago. We celebrated as well as we were able. Covid-19 would have had an impact anyway. I have joined the incurable cancer group. I’ll no doubt see you there.

Hope you had a great cake!