Sentinel lobe biopsy

FormerMember
FormerMember
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Hi 

I had a wide local excision and sentinel lobe biopsy on the 4 October, The scar on my back is healing OK and I think the biopsy site is healing well, but feels a bit uncomfortable, I have noticed that the area under the scar is beginning to feel like I have a sausage in my armpit and I can feel it when my arm is down by my side. it's beginning to come more noticeable, even typing this email I can feel it as my arm is stretched out  My question is, is this how it is meant to feel?   I have never had surgery before so don't know what it is meant to feel like or should I get this checked out.  The scar is healing and my skin is not inflamed. It isn't squidgy, more of a solid mass. I get my results on the 5th November, should I wait till then or go to the Dr.

Thank 

D.E.N

  • FormerMember
    FormerMember

    Hi

    I had to reply to this. I also had a WLE and SLNB on October 4th. Although mine was a SLNB in the groin (mole was on my thigh). My dressings come off tomorrow but all “seems” to be ok. It’s a little uncomfortable but not painful. However, I have a round lump in the SLNB site too. It’s not just a swelling, it feel like a hard round mass - it’s visually protruding a bit too. I called the Cancer nurse yesterday and he said to keep an eye on it as these things can cause infection - I’m seeing the plastics nurse tomorrow anyway so was planning on showing them. He looked up my results for me too and it’s all come back clear. Thank goodness for that. 
    Hope you are recovering ok. I have another week off work and then I am back. 
    Take care

  • FormerMember
    FormerMember in reply to FormerMember

    Thanks for your comments and happy that you got good results, fingers crossed I will too. have to wait till the 5 November, I will keep an eye on it, thanks again

    D.E.N.

  • Hi , I hope your ‘sausage’ is feeling not as uncomfortable now, I hope your skin cancer nurses are as approachable as mine and that they can give you their take on what you are experiencing, and any advice. I hope you’ve got things planned in to make the wait until 5/11 fly by.

    Best wishes

    Take care KT

  • Hi and how are you?

    Have you had the results of your WLE and SLNB yet? Hoping that there was no melanoma found in them Fingers crossed

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  • FormerMember
    FormerMember in reply to latchbrook

    Hi latchbrook

    It hasn't spread, so good news, but confused now.  Do I still have cancer or not?. Didn't get to talk with consultant, just got told it hasn't spread, checked the scars, and that was it.  I had so many questions, I haven't spoken to anyone about it yet, I was with the consultant for about 2 minutes. Was hoping to get answers, now I have to wait till February.  I have other moles that give me cause for concern, if it hasn't spread, does that mean they are not cancerous or do I have to go through the same process for every dodgy mole. I should be happy, but my mind is working overtime. February seems so far away when I could do with talking through my other moles.

    Thanks for checking in, 

    DEN

  • That's great news that no cells were found in your WLE or SLNB 

    I know it can feel awkward when you're with your consultant but if you have questions to ask always ask them. They do have lots of patients to see, and it can feel a bit like you're on a conveyor belt, but in my experience they'll always take the time to answer your questions if you ask them. 

    I'm assuming that the February appointment you're referring to is the first of your 3 monthly check-ups but you don't have to wait until then if you're worried about other moles you have.

    You should have been given the contact details of a skin cancer nurse specialist (SCNS) at the hospital where your consultant is based. If you're ever concerned about something in between your check-ups then she is the person to call. In my experience their phone nearly always goes to answerphone, as they're usually with patients, but if I leave a message they get back to me within 24 hours. If the nurse thinks that you should be seen sooner than your next appointment she'll get you an appointment with your consultant in the next few days. It's likely to be fitted in at the end or the beginning of surgery but you will be seen.

    You are correct when you say that you no longer have cancer but these check-ups make sure that there's no sign of it on your skin or in your lymph nodes. Hopefully, you've been given advice about how to check yourself once a month.

    Unfortunately, just because your existing melanoma hasn't spread this doesn't mean that all your other moles are okay and yes, you would have to have them removed and biopsied if your consultant felt that they needed to be removed. Have you had your whole body checked at anytime since the first mole was discovered? 

    Let us know how you get on when you phone your SCNS.

    x

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  • FormerMember
    FormerMember in reply to latchbrook

    I havent had anyone look at my moles, just the one that got removed. I presumed that is what happens at the 3 monthly checks. I have no idea what happens at these checks and as it has been cancelled I will wait till then. It will be a 6 month check instead of 3. I'm sure it will be fine, I will wait till then.

    Thanks for your reply

    DEN

  • Hi again

    It is usual to be checked all over, when you have been diagnosed with melanoma, at some point between diagnosis and having your WLE and SLNB. Mine was done when I went for my pre-op.

    As you say you're worried about these other moles please don't wait 2 months to have them checked but contact your SCNS so that you can be seen sooner. They won't think that you're being a nuisance and would much rather remove the moles sooner (if they need removing) than later when they may have grown further.

    When you go for your check-ups you'll be asked how your general state of health is and whether you've noticed anything recently that's concerning you. You will then strip down to your underwear and have your skin looked over and your lymph nodes checked. This is also the time to ask any questions you might have.

    The whole appointment probably only lasts about 5 minutes but, as the clinics are often running late, be prepared to be at the hospital for quite a while!

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  • FormerMember
    FormerMember in reply to latchbrook

    Hi

    I was told I’d have regular checks by dermatology as well as my follow-ups with the surgical (& oncology for me) team. They tend to just check my scar and lymph nodes rather than looking at any other moles.

    However it hasn’t been clear how the follow-up dermatology appointments are supposed to happen! I’ve contacted them directly a few times to have moles looked at and they always get me in within a few days which is fantastic. Our local dermatology service though is provided by Virgin Healthcare, so I don’t know if it’s that easy normally!

    If you saw a dermatologist with your original mole, then just try contacting them and requesting an appointment, they should see you and it’ll either put your mind at rest, or get the ball rolling sooner on what is a lengthy process as you know!