Hi all, I'm new to this community but have been reading you all for a while. I haven't had a diagnosis but I'm a little worried and hope that writing about it might bring some peace. I've had a mole in the sole of my foot for a while (few years though I can't tell for sure when it first appeared). I completely ignored it thinking it was just a mole. It is fairly big, flat with asymmetric edges. I have dark skin, never got exposed in the sun and so have always believed I was immune to skin cancer. I wish someone had told me that this was a misconception and that there is another type of melanoma not related to sun exposure and that it typically affect dark skinned people. Anyway, a cousin of mine had a mole appear on her leg last month and she quickly had it checked but was told it was fine. That prompted me to have mine checked and obviously my GP didn't like the look of it and referred me to a dermatologist. I saw her yesterday and as soon as she saw it she said she wanted it removed. I tried gauging her reaction but she remained very neutral and said she absolutely couldn't give me an opinion because it could be cancer but it could also be normal. Only after they removed it and looked at it can they tell me more. She was lovely but was neither alarming nor reassuring (don't know how they do it really). I know that the chances of surgery and treatment are quite good when detected early but I'm quite worried about mine going undiagnosed for years. I asked her if it was cancer what are the chances of it having spread and again she said she couldn't say anything but that the likelihood of it being advanced were slim because I haven't had other symptoms such as lumps in other parts of my body. She did say the surgery would be painful and healing would be slow due to the skin in that area being very delicate and I made the mistake of looking at photos online and now that's all I can think about. I'm not even sure what I'm asking about here, I know how hard it is to provide any sort of information in this case but if anyone had or is going through a similar experience I would love to hear from them. Thank you so much for reading.
Well my surgery has just been cancelled!! There is a shortage in dermatologists apparently and they have no idea when one will be available!!! I am absolutely livid that they gave me less than 24 hrs notice, I've had to cancel big plans and take precious time off work. Plus the surgery is urgent and delaying it is not going to do me any favours :((((
Hospital said they will try and rebook me within 2 weeks but they can't promise anything!!! I tried explaining the urgency but the nurse seemed completely unfazed. Could a delay in excision be life-threatening? Should I try and go private knowing that my private insurance won't cover any of it because i've only joined them 6 months ago and had the mole for 2 years so I would need to pay thousands of pounds but obviously I am not willing to take any risks if the NHS doesn't care. Grateful for any advice.
Aw that’s rubbish news - I can totally understand how frustrated you are, it’s a nightmare trying to sort work (and life!) out ready for surgery.
The lead up to my surgery felt like forever, when I just desperately wanted it all gone, so I can imagine how scary a delay is. Try and keep things in perspective though before you rush in to paying thousands. You said the mole had been there for years already, and you’ve had a biopsy which should have taken a big chunk of it (if not most) already.
Are you currently at a general hospital rather than a specialist hospital? I wonder if it would be worth a conversation about what timelines might be like if your care was transferred to a specialist hospital - if that’s even a possibility...? I’m just thinking there might be less chance of cancellations if there isn’t an A&E attached with constant new urgent cases. I know nothing about it though, so might be utter rubbish! And I guess it might ultimately lead to more delays if you have to wait for a new MDT meeting and pre-op assessment and the like... Yes, very frustrating. I can’t imagine that even going private you’d be booked in any quicker than 2-weeks though?
Have a glass of wine and a good cry - although I expect you’ve already done that bit already! Deep breaths.
xxx
Katybb thank you for your help. I haven't had a biopsy, the doctor said she wanted a full removal of the mole as soon as she saw it and she managed to book me in for surgery within 10 days which I thought was great. I am absolutely shocked that the hospital decided to cancel my surgery the night before and not even offer me a new date. I feel hugely let down and any hope I had is now replaced by uncertainty and dread.
Yes I should have surgery at a general hospital, the only specialist hospitals I am aware of are private clinics where I would normally have gone had my private insurance company agreed to treat me.
Anyway, I will try and calm down now. I just had a go at my son and I feel horrible. I don't even know how I would cope on a day to day basis if this turns out to be cancer.
Thank you xx
I see - so at least there’s still a glimmer of hope it’s nothing serious - not that that will put your mind at rest. Not knowing is the worst! Fingers crossed you get rebooked quickly.
Big hugs Xxx
Hi
I can understand your frustration. But do try not to over thing the what ifs .
waiting for any treatment & results are really hard at any time but they would not have done this unless there was no alternative & also they feel that it would not be detrimental to your health . They will rearrange soon I’m sure.
So hard to do but try to stay calm . Working will not change the outcome & you could have made yourself stressed for no reason . As I said it’s so easy to say . Take 1 step at a time .
sending you big hug & wishing you good news soon xx
Hi Bellflower
So sorry to hear your operation was cancelled,I’d be furious too!
hope you don’t have to wait too long,it really is the worst of it , Yep I’m scared of the pain too!as you know I’m waiting for the next step to find out what stage etc I’m at ,like you I want to know so I can plan.
I’m fine keeping it all locked up inside most of the time ,that’s until I tell someone ,and their face drops they say all the nice things you expect .Like your fit, your strong, your young be positive etc ,then I well up and cry.getting loads of hugs which is lovely ,but it’s horrible at the same time to see them get upset as well.but I’m really lucky have all the support.
still dreading telling my boys ,sometimes I’m talking to hubby and we have to change the subject quickly when they walk in the room.
fun day today hubby had a hospital appointment turns out he’s probably got a torn shoulder ligament ,may need surgery.
Hey ho ,life’s never dull in our house.
so chin up Bellflower we’ll get through this together.
thanks for your kindness,I’m not brave- just a bit scatty and doing the best I can,
I’m here for you too xx
lots of extra hugs for you (or cwtches as we say in wales)
Oh, that's not good and I'm not surprised that your first reaction is that you're livid and you're thinking of paying to have it removed privately.
I do totally understand how upsetting waiting for surgery can be but the fact that your excision was cancelled at such short notice suggests that an emergency probably happened. I know that's no consolation to you but if you've had this mole for a number of years another week or so probably won't make any difference. Ideally lesions should be removed within 2 weeks of referral but this doesn't always happen.
Six months ago I was down to have another suspicious lesion removed (turned out to be nothing) and I too had my op cancelled at short notice and rearranged for a couple of weeks later. The plastic surgeon who was doing it turned out to be a specialist in burns surgery so I then realised that my surgery had been cancelled because someone was in more need of his expertise than me.
If you don't hear anything from the hospital in a couple of days, you could always give the dermatologist who referred you for surgery's secretary a call and explain that your op was cancelled and ask if another date been arranged yet.
I hope that you get another date quickly.
Sending a supportive ((hug))
Thank you all so much for the kind words of support and the hugs :)) It really helps to talk about it and I am feeling better today. Still waiting for the nurse to call me back with a new appointment date but they'll probably just send a letter.
Fannyfayefaffington, I am sorry to hear your husband is also dealing with health issues and hope they can fix him without the need for surgery.
I have another worry and I hope I'm just being paranoid. About 3 weeks ago my index toenail turned a funny blue/purple colour out of sudden. It wasn't painful and I don't think it was bruised either. I forgot to mention it to the dermatologist who examined my mole. I didn't think much of it and last week it started to go back to a normal colour. The nail looks almost completely fine now apart from a small brown spot or stain under the nail which upon googling images looks similar to subungual melanoma. I am freaking out a little here. Could I have ALM and subungual melanoma at the same time? or could one develop into the other one? This is not on the foot where I have the mole by the way. Any ideas?
Hi
I'm glad to hear you're feeling better today. I know it's horrible when you're all geared up and then your op gets cancelled.
It's natural to worry that other things you notice on your skin or under your nails means another melanoma, we all do it. The only way you'll get peace of mind is to show it to your dermatologist. I don't know if you've been assigned a skin cancer nurse specialist (SCNS) yet, as you haven't been diagnosed, but if you have give her a call and she should be able to get you in front of the consultant within a few days. They can usually slot you in as an extra patient at the beginning or end of the clinic.
If you don't have a point of contact, phone the dermatologist's secretary and explain what's happened. It would be best to get it looked at now because they might not have time on the day of your surgery to look at it. Also if it does need biopsying they'll need to allow time for both ops to be done at the same time.
x
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