hi all.
i was originally diagnosed with a 1B nodular melanoma on my thigh (1.9mm, non-ulcerated). I’ve since had a wide local excision and sentinel lymph node biopsy. One lymph node was clear, and the other showed a 1mm deposit, so I’ve now been staged as 3A.
My team are arranging my oncology appointment to discuss next steps, including whether immunotherapy is recommended or whether active surveillance is more appropriate. At the moment, their advice is active surveillance given I’m 35 with a young child and the risks of preventive immunotherapy might outweigh the benefits. They said that if anything’s ever pops up on the scans then I could opt for the immunotherapy rather than putting my body through it ‘just incase’.
I’m trying to understand what others in my position have chosen and how they’ve felt about their decision.
If you were staged 3A:
• Did you go ahead with immunotherapy or choose monitoring?
• How was the decision explained to you?
• How are you doing now?
I’m feeling quite overwhelmed and would be really grateful for any shared experiences or reassurance.
Thank you so much!
Hey there
I don't have any experience at this stage so have no advice to offer I'm afraid, but just wanted to say I'm so sorry to hear this as I've followed your story so far and was really rooting for the all clear for you.
Hope you manage to find some info and support here for your next steps.
All the best to you x
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