Recurrence

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I had a skin lesion (below right; after removal, below left) removed in Sept 2023 which turned out to be a malignant melanoma. I wasn't given staging info, but was advised that it had a thickness and size that meant immunotherapy was strongly recommended. I was told that if I declined treatment, there was a 52% chance of recurrence within 12 months, and if it did recur there was a 25% likelihood that it would be systemic.

On this advice, I did 12 months of immunotherapy, and was also fortunate to qualify for a clinical trial of a targeted vaccine. I competed treatment in November 2024.

I have had CT scans and blood tests every three months during and post treatment, all of which have been clear. I also have my skin checked by a dermatologist every 6 months. At my most recent check up he decided to remove a suspicious looking 'mole' (below), which was on the same forearm where my original melanoma had been found. The pathology has just come back confirming that this 'mole' is in fact a melanoma, and I need to have further surgery to get a clear margin around the site.

I will likely be seeing my oncologist (who runs the clinical trial of which I am part) once we have further pathology to review.

My questions are:

  • Does this new melanoma mean my melanoma has spread?
  • Has my melanoma 'metastasised'?
  • Does this mean the immunotherapy and vaccine therapy haven't worked?
  • If it does mean they haven't worked, will these treatments not be suitable if I need further treatment for this latest melanoma?
  • Why would this new melanoma have not been picked up on my CT scans?

Sorry for the lengthy post, but I had really thought I was through this and my brain is buzzing with thoughts of having to deal with it again.

Thanks for reading.

  • Hi  and a very warm welcome to our little corner of the community

    I was diagnosed with melanoma nearly 9 years ago now but didn't need immunotherapy and fortunately haven't had a recurrence. Having not had a recurrence, or the same treatment as you, I'm afraid I don't know the answer to your questions.
    If you don't get any replies from people here who have had the same experience as you, you could post your question in the ask a nurse section of the online community and one of the nurses will aim to get back to you within 3 working days.

    It would be great if you could put something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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