Back again. Scared about the future.

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Hi.  

I’ve neglected to keep up with this forum but now realise I desperately need some support and in turn would like to think I can help others at some stage.  

I was diagnosed with stage 1a acral Legitinous melanoma earlier this year - a mole between my toes.  This was a bolt from the blue (and unfortunately despite trying not to googled like mad and found there’s higher risk with acral melonoma and totally baffled not necessarily caused by the sun).   I had removal / WLE with skin graft and 2 more non concerning lesions removed.  All clear. 

My foot healed very well - I’ve basically become paranoid about suncare - but so relieved. 

Then my 3 month check - went in all gung ho and absolutely gutted to have the plastics consultant find 2 more - 1 on the side of my other foot and one on my tummy.  I’ve just had these removed and am beyond stressed waiting for results.  

my fears are compounded with the consultant telling me I have a large number of atypical moles and that my monthly self checks are very important.  However I have such a large number of moles it’s really difficult to identify any new or changed ones.  And once the surveillance comes to an end it will be very worrying. 

added to this I’ve found 2 tiny black specks - one on the back of my hand one of my lower arm.  I’ve sent pics up to the cancer nurse as I think this is how my one between the toes started.  Almost like a speck of dirt you can’t remove.  


I have a disabled daughter plus 2 small grandchildren and I just want to live   Sorry for being so dramatic ! 

Any advice would be hugely appreciated. 

one day I’m thinking - live for today and another day I’m planning my funeral   Sorry for the long post and thank you for any comments  xx 

  • Hi  

    I'm sorry to see that you've had to come back but hopefully you'll find the group just as supportive as before.

    I have lots of moles and agree that it can be difficult to spot new ones or notice if existing ones has changed. What my dermatologist got me to do was to take photos of all the different sections of my body, ie lower front left leg, upper front, left leg, etc. I then use these to compare me now with how I looked when I took the photos. This enables me to spot any changes or new moles.

    I'll keep my fingers crossed that the moles you've just had removed come back as atypical.

    ((hugs))

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • I am so appreciative of your reply.  Thank you so much Blush 

  • Hi there

    Sorry to hear about your current investigations and worries, I totally understand!

     I  have had a few ‘scares’ in the last year and I have just had to have another biopsy on my right thumb (my original diagnosis was 2b on my left thumb, which I had to have amputated 3yrs ago). The fear and anxiety is very real and upsetting but we are never alone. This group helps us and hopefully knowing there are so many people out there who genuinely care will offer you some comfort.

    Stay strong, best wishes, Deb 

    Deb ... 'I can ... I will ... and I shall' Blossom

  • Thank you so much Deb.  It’s so good to know you’re not alone.  I really hope your biopsies come back clear.  Kind words make such a difference!   Sending big hug to you