Levothyroxine any advice on taking it ?

Hi Daisy

I’ve been on levothyroxine since august 2024 after my first infusion of Pembro knackered my thyroid. I’ve not had any side effects from it. It can take about three months to work out the right dosage - mine started at 75mg a day, then was dropped to 50mg, then put back to 75mg. I take it as soon as I wake up - the only annoyance is having to wait an hour before my first dose of caffeine. 

It’s been just a minor inconvenience compared to all the other cancer-related stresses and treatments.

Hope that helps.

Claire

Thank you for your reply that was unfortunate having that happen after first treatment  my thyroid worked for 14 treatments, they are still going to continue with the treatment which concerns me. l have decided I will take the pill very early in the morning.......will probably drop off to sleep again afterwards,I am going to miss that early cup of tea.

Are you still having the treatment? 

Daisy

I had my ninth and final Pembro end of July. Scans remain clear but I’m still getting horrible side effects - joint pain that I’ve had for a year that makes me feel like an 80 year old with arthritis (I’m 61 ) and now a nasty rash that I’ve never had before, all over feet and creeping up my legs! It’s not fungal, possible psoriasis, no doubt made worse by 18 months of stress. 

i just read your profile - so sorry you have had such a bad time over the last few years. Was yours accral lentiginous melanoma? (Mine was). Having to take levothyroxine is just mildly annoying compared with everything else so I hope you manage with it ok.