My husband has been bravely fighting BRAF+ melanoma for the past 2 years. He has had operations, drains, 2 rounds of targeted therapy, radiotherapy, immunotherapy and nothing has worked. He has stage 4 plus a fungating mass on his groin which is the size of an orange. Every stage had been so undignified and terrible. The hospital has had to withdraw his targeted therapy which was only giving a mixed response and the lump on his leg continues to grow.
He was meant to be starting a phase 2 trial on Tuesday, which has had to be delayed due to infection and he has been in hospital since Monday having iv antibiotics. He was sent home yesterday but is so incredibly down. He can't move about much, he is now without any cancer fighting drugs at all, the trial is now up in the air and they might have to wait another 2 weeks before they can start it. He is only 41, and we have 2 small children. I am absolutely devastated that all this has happened. Going out of my mind with worry at what this thing can do to him in 2 weeks.
If you'd have told us 2 years ago that we would be hanging on to the hope of a trial, we would have scoffed at the idea. But there is no alternative left. I am broken. I feel like I have lost all hope, and I don't know what to do.
