Hello,
Does anyone have any experience with making a decision about continuing or stopping immunotherapy after 2 years? I've had 2 doses of Ipi/nivo and I'm coming up to the end of 2 years on single dose Nivo. I'm so grateful that my tumours have shrunk by half and remained stable: no growth. The oncologists will do scans and tests and then offer me some options, I think. One of them says I may be offered a 3rd year because I am responding well to the Nivo. Another thinks I should stop the immuno and have a period of normality in my life. I will be put back on it when I need it. They'll continue to scan me regularly. However, when I do a Google search (sorry! desparate! LOL!), it seems like there is no conclusive research saying stop OR continue. All the research is inconclusive. My situation is: I have an okay quality of life, despite fatigue. I'd really like to live as long as possible rather than have a potentially improved quality of life in the short-to-medium term.
Has anyone had to make a decision like this? Or does anyone have any experience with what happens after the 2 years of Nivo?
Many thanks,
Dots
Hi Dots
I don't have any experience with the treatment that you're on but noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
There are lots of people in the group who are on the same immunotherapy as you so hopefully one of them will pop on and let you know what happened when they reached 2 years of treatment.
It would be great if you could let us know what you decide to do as it'll be useful for others in the future.
Anne
"Never regret a day in your life, good days give you happiness, bad days give you experience"
