stage 1V melanoma immunotherapy

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Hi,

My melanoma has spread pretty much all over and have been on ipilimumab/Nivolumab combo fir 3 rounds of treatment, so far working quite well but continued rash has meant I can't have final round and now on steroids to control the rash.  Has anyone had similar issues and does it matter I couldn't  gave 4th round  of treatment. Will continue with Nivolumab in a few weeks time for 2 years! 

Thanks,

Kate

  • Hi I was able to complete the 4 treatments but lots of people can’t. I was then on Nivolubmab for a few yrs. For 2 years now I have only had scans and up till now no evidence of disease. I had melanoma in my spine ,lung and a very large tumour near my kidney.ball is left is a dead tumour which shows up as dead in pet scans etc. It’s a long journey but the immunotherapy drugs are amazing. I wish you well 

    Lgrgdg90
  • Thank you so much for your message, has given me a boost as I have a tumour behind my eye but other cancer  deposits  have gone thankfully. Y ou did very well to complete 4 rounds! I just hope 3 rounds and maintenance will be enough to keep me going!

    Best wishes 

    Kate