Full remission

That's great news Allyona and thanks very much for taking the time to share this with us all.

((hugs))

What wonderful news Alli. Thanks for sharing x

Amazing news - the best Christmas present! Huge Congrats xxx

Congratulations 

do you mind me asking how many brain met lesions you had / have ? 
what treatment did you have ? 

Hi Suzie,

I had 3 brain lesions on my frontal lobes 

I’m on maintenance nivolumab at the moment until May 2026 is the plan, this is dependent on my scans mri brain & full body ct every 3 months

Wishing you all the best on your journey 

Alli x

This gives me such hope.my husband has incurable metastatic melanoma and started the same treatment as you last week.i pray he will get good results with it.i am so happy for you.                                                  Janine xx

Hi there - how are you? Just wanted to check in x

Hi suzie 

I’m doing ok Ive just reached the end of my first year of treatment I’m on the maintenance nivolumab 

I had changed to monthly treatment for 4 doses but wasn’t tolerating it well my pituitary gland is damaged also my adrenal glands diagnosed with adrenal insufficiency so I’m on steroids 3 times a day now & for life but it’s manageable so changed back to every 2 weeks & im tolerating it well

my last scans in march were clear no evidence of disease so it’s all going the right way for me thankfully I just hope it continues.

how are you doing?

Hi janine 

just wondering how your hubby is doing?