Following the removal of something that was not a mole I have been diagnosed with a Spindle Cell Melanoma. I've been told I'm going to have an WLE and lymph node removal. I was led to think this would be soon, but reading on her it looks like months?! This is not going to do my mental state much good. I have a number for a skin cancer nurse but they never answer. Have so many fears right now, I just want to get on with it
Hi Essexgirl200 and a very warm welcome to the group
I'm sorry to read that you've recently been diagnosed with melanoma and I remember how fearful I felt when first told.
I too had a WLE and sentinel lymph node biopsy (SLNB) and was worried that the wait was about 10 weeks. I spoke to my skin cancer nurse specialist (SCNS) and she was able to partly put my mind at rest by telling me that the excision biopsy had got clear margins, ie no cancer cells up to the edge and by pointing out that the tumour had been removed and that the WLE was essentially a "mopping up exercise" to just be absolutely certain that no cells had been left behind.
I see that you've said that the SCNS "never answer" the phone and I would agree with that. Over the years I've always had to leave a message on the answerphone but they do then ring me back. Most of the day they are either with the consultants or patients but have a time set aside to return phone calls. I'm sure if you persist you'll be able to speak to yours for some reassurance.
When you feel ready, it would be great if you could put something about your diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
((hugs))
"Never regret a day in your life, good days give you happiness, bad days give you experience"
