I have Stage 4 melanoma which has spread to my lungs. 2 sessions of ipi/nivo have left me with severe inflammation of my lung.
All treatment has had to be stopped until this is resolved. I was hospitalised due to problems breathing and given iv steroids over 3 days. I was then discharged on a dose of 40mg a day, reducing every 7 days. The problem is that every time the dose is reduced my breathing gets really bad again and it has to go back up. I have now been on steroids for over 2 months and I'm getting desperate. I have been referred to a respiratory consultant who currently has no alternative suggestion (I am waiting for a bronchoscopy) amd who has said it is possible that the damage may be permanent. I cannot get back on treatment until I am down to 10mg of steroids.
Has anyone had a similar problem amd how have they managed to resolve it or have you had to stop treatment?
Hi J55
I'm sorry to read about the side effects that you have and it all sounds very stressful.
I don't have any similar problems but noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list where it'll be easier to see.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
