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Congrats IvysMum, 

Such good news. I got the all clear 2 days ago myself and was over the moon. Sometimes, I do think what if it comes back but trying to push that thought away. I think it'll get better over time and we'll hopefully  worry less.

Hi IvysMum

That's good news that your WLE was clear but I noticed that you said a trace was found in your SLNB. Was it such a small amount then that adjuvant therapy is not needed and they are instead scanning you.

Try not to be hard on yourself about not pressing to be seen sooner. I think most of us trust that the health professional knows best and are only too happy to accept that nothing needs to be done.

Let us know how your appointment goes in a couple of weeks time 

x

Thanks Elmyra for your kind reply….I’m just still a little over anxious despite my relief…I’m going away for a few days next week so hopefully that will blow the cobwebs away x

Hi Latchbrook….it was a phone call so I was trying to absorb a lot of info as you do!…..the nurse said it was a miniscule amount, her words…so I’m presuming the ongoing monitoring and scans is the necessary follow up….when I see real humans at my appointment I will be able to ask more although she did say not to hesitate to phone if I was concerned or had questions…I may do a double check just to clear my mind before my break!….and thanks for your reassurance x

Having a chat with your SCNS before you go away sounds like a great idea IvysMum. You'll then be able to having a relaxing break. My SCNSs have always been lovely and only too willing to explain things.

Have a great break

x

Thank you x

Hi latchbrook  I have followed this up and spoken with the hospital a couple of times this week….they had their MDT meeting and yes I am being taken to the next stage of treatment….a mopping up exercise!……they are referring me to the specialist hospital in my area for oncology…being sent for a head CT scan as this is a requirement apparently although I did have a clear CT scan at the beginning of all of this…the nurse said likely I will be offered immunotherapy as I am otherwise fit and well…..TBH I am more settled now as I did think at the time after reading much of what’s been spoken about on here that it wasn’t right…..I guess I misheard or misinterpreted what was said…I believe I’m classed as a 3a

I'm sorry to read your latest news IvysMum but it's probably better that you've cleared this up now rather than having it sprung on you at your appointment in a couple of weeks time. It will give you time to think about the sort of questions that you want to ask.

Sending a virtual (((hug)))

Thanks latchbrook x