Nevoid Malignant Melanoma

Hi Macklynne, I am not a medic, and my primary was occult, meaning it couldn’t be found. I would imagine Nevoid is just the terminology to describe yours. You’ve said it was a nodule I think on your skin. The info and support sections describe a few other types. 

The guidelines of the site say that it is not here to replace medical guidance so you could give the Macmillan support line a call who could answer any questions you perhaps have about your diagnosis or perhaps suggest any questions you might want to put to your hospital team. 

Oh sorry, I wasn't looking for medical guidance so much as just other people who have the same type as me so I could read their stories.

My mistake, I hope someone comes forward for you.

Hi Macklynne

I had a nevoid melanoma diagnosed in 2019 - PT3A. I had a wide local excision and a sentinel node biopsy. Thankfully it had not spread to my lymph nodes. I have a check up every 3 months and so far so good. As far as I’m aware naevoid is the name of the cell and although rare it behaves similar to other forms of melanoma. I hope everything goes well for you. Take care D