Pembro - Should I be scared of side effects or not?

FormerMember
FormerMember
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Hi all,

It's great to have this amazing platform and connect with wonderful people like you - somehow feels like one is less alone in this!

I've recently been diagnosed with Melanoma Stage 3 AA, after finding a minuscule deposit left in a sentinel gland, post biopsy and wide excision on my upper back. My oncologist has mentioned doing Pembrolizumab for a year, every 6 weeks. When she run through the side effects of Pembro, (some of them can be long term and that's what really got me thinking and worrying) I left quite scared and confused... However, once I found a bit more info about this drug online (here in MacMillan and Cancer Research) and after reading a few of your experiences, somehow it feels like those side effects are (or can be) more manageable than I thought. What are your personal experiences with Pembro, in general? I'm 30 years old and in very good health otherwise, so the idea of feeling 'sick' or tired for a whole year is not very comforting! Basically, is Pembro as scary as it seems, or is it actually manageable?

Thank you very much, and wishing you all great health and strength!

Lucia

  • FormerMember
    FormerMember in reply to Amccl

    Ask your Oncologist to confirm this and you can get a copy of your diagnosis letter from them or your GP. Pembro worked for me after 8 months though I did become intollerant to Glutten and had a bad flare up off Colitis (which I have a history off, pre-Pembro). Good luck with the treatment and check out Melanoma UK for other resources and support.