like you I am sorry to be in this particular club . Hey ho what choice do we have . I confused my symptoms with Covid and neglected them . By the time I was diagnosed I was at stage 4. Massive involvment and Splenamagaly. The diagnosis absolutely floored me as Over the last thirty years I have had three primary Cancers this being the fourth. Someone up there doesn’t like me
I have just completed my fifth chemo R- Chop. Was hospitalised for the first , five days , no real issues , then day care since three weekly cycle , standard treatment I am told is six weeks . My half way scan shows good reduction in most glands , a couple are stable. He is satisfied with that so no change to the drugs.m PET scan due after the sixth cycle . Then it is in the lap of the Gods . My consultant did briefly mention the possibility of a Stem Cell Transplant but I made an early decision if the became an option I didn’t want it .
I share this as the path I am on here in North Manchester seems common practice . It reflects exactly the care at the world Famouus Christie .
of course I don’t know yet if I will achieve short term remission. We shall see . Good luck everyone
Other views welcome
Hi again Kaygal, good to see things have been going ok and yes it’s all down to the scores on the doors (as the old game show host used to say) so let’s look for a very good result.
I have a different type of low grade incurable NHL so for me an Allo (donor) Stem Cell Transplant (I actually had two - see my profile) was my only ‘next’ hope as without it I would have put on my wooden suit 4-5 years back
The Christie is great and although I live way up in Inverness they, along with a few other cancer centres of excellence played a part in putting my treatment plan together getting me into the position I am today.
I am now 5 years in remission and doing great, amazing in that back in 1999 I was told I would never see any long term remission.
Keep on keeping on and keep posting as it’s good to hear how folks are getting on
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