Hi was last hear in 2015 had been diagnosed then at stage 1 had radio therapy then and been on watch & wait until now went into the Christie on Friday 5/7/19 after all the tests for a update on the progression. They decided to keep me in and Started Chemotherapy the next day. They have put me on the Nordic protocol Rchop and High dose cytarabine over the next 6 months. It's all been a bit of a blur my main problem at the moment is a persistent cough which does not to stop had for 12 weeks the doctors say it's down to the lymphoma irritating my lungs has anyone had this and does eventually go. Anyhow back at the Christie in a couple of weeks for next round of Chemotherapy and a Hickman line fitted should be 3 day stay.
Hi Paul and good to meet you but not so good under these circumstances.
Can’t add much to what John has said apart from agreeing with looking for improvement as the treatment works and as always keep drinking lots as this will protect your kidneys.
I have been through two Stem Cell Transplants (SCT) with cells from my brother and so far I am coming up to 3 years 9 month post SCT and just under two years in remission.
The Christie has a great SCT Unit and you would be in safe hands.
Should you end up on the SCT rollercoaster we do have a dedicated Stem cell transplants for blood cancers Forum where you will connect with some amazing people.
All the best.
