Pelvic lymph node endometrial cancer

  • 4 replies
  • 6 subscribers
  • 158 views

Hi All

I am a frequent contributor to the endometrial group, but have recently (3months) been  told that my cancer has spread to my pelvic lymph node. I am waiting for a referral to the Royal Marsden hospital for surgery which hasn't been quick. If I decline that, I have been told that I will start dostarlimub immunotherapy.  

Does anyone have any experience of either? 

  • Hi Lee

    I am sorry to hear that you have had some spread to your lymph nodes. 

    I hope that your referral to the Marsden comes through quickly and that you can find out what surgery would involve and whether it may be possible. 

    Here is some general info on Dostarlimab that may be of help. 

    Dostarlimab (Jemperli®) | Macmillan Cancer Support

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  •   thanks for getting back to me, you do get around Wink. I have read all of the info that is supplied, but was hoping to hear from people who have experience. But I did see that this group is pretty dormant so my hopes weren't high. I'll probably post it in the womb cancer forum as its got regular activity 

    Thanks 

    Leeanne

  • (1) Macmillan Online Community

    This link is a search of dostarlimab posts across the community.- may be worth having a look.

    Jane 

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Hello

    I am very sorry you are experiencing this. I have been having treatment for a few years and now confirmation of cancer progression to my pelvic lymph node.  I am interested to know if you were referred to the Royal Marsden by your NHS doctor or you have decided to go privately? I have not been given an operation as an option.  What did you decide to do?