I always think its weird when I say I have endometrial cancer in my lungs & lymph node, when I search it up it seems that they always say its rare. I had endometrial cancer around 4 year ago only treatment I had then was full hysterectomy, they thought they had got it all out but now it is back, they said that it was a bit that had been missed.
I find it weird though that even though I am starting chemo on Friday that it is only being used to stop the cancer from growing or spreading any further, he doctor said I am always going to have the cancer, so does it just remain in your body and if it is still in there after treatment what is the likely hood of it becoming active again.
You all know with something like this your head doesn't seem to give you a break, Im not looking forward to chemo encase Im sick or feel ill, Im not bothered about losing my hair etc
Hi Pabalad4173e my story is very similar to yours apart from the treatment, I haven’t had chemo. I was diagnosed in 2009 with endometrial stromal sarcoma after a routine hysterectomy. In 2014 I was told it had come back in my lungs. At the time I was on HRT but in 2014 they realised my cancer was estrogen fed, so I have been on hormone treatment since to block all estrogen. If you click my profile picture it will take you to my profile where you can read my story.
When I first joined the site I wasn’t sure which group to join. I find the Womb (uterus) cancer forum very informative and you will find ladies there on a similar treatment plan to yourself, but also the Lung cancer forum will be very helpful for you and is more active than this secondary forum.
Good luck with the chemo. They keep a very close eye on you, and you are given anti sickness and steroid tablets to have at home. Everyone reacts differently to treatment, and for some it hasn’t been as hard as they anticipated.
Hi KOstar5275ae unfortunately chemo and immunotherapy does not work for LGESS but I had radiotherapy for my LGESS tumour in my bronchial airway and it was very successful!
In the UK there is currently a research programme looking to see if there is an immunotherapy that would work on LGESS, which completely change the way LGESS is treated in the future. At the moment it is only hormone therapy, but once the sarcoma is starved of the estrogen it does die! Of course having no estrogen does have a horrible effect on our bodies, so you will go through a lot of adjustment on the letrozole, but have faith it will do its job! X
