Hello
I was diagnosed with primary Oesophageal cancer in March 2020 after a misdiagnosis in October 2019 of Globus and reflux and then also told on the same fateful day that I had spots in my lungs and was possibly in my pelvis as well (bone). They don't mention the bone anymore. So I had 5 cycles of chemo but have pushed for Immunotherapy all the way as have heard such good things about it. At first I was slammed down by the NHS but then an Early Access Scheme Medicine Scheme came up for Squamous Cell Oesophageal Carcinoma and miraculously I am now on that after 10 sessions of radiotherapy as chemo stopped working. The immunotherapy I am on (only had two sessions) is Nivolumab, every 4 weeks for up to year if it works. I just wondered if anyone had heard anything about this? I know immunotherapy treatment for oesophagus cancer is very new but used extensively for lung, neck and throat cancer with good results. I am only 53 and have everything to live for and fought tooth and nail to get on immunotherapy as lots of obstacles not least having a stent, blood clot and chemo stopping working after 3 cycles resulting in tumour growing into my windpipe and impairing breathing somewhat. However, few steroids later and radio sorted that out and now feeling a lot better so back on imontheraphy.
Looking forward to any feedback.
Best wished March13
Hi and a very warm welcome to the online community
I'm very sorry to read that you've been diagnosed with oesophageal cancer which has spread to your lungs. I can't help with any personal experience with Nivolumab but I know it is used to good effect for people who's melanoma has spread, as I'm normally to be found in that group.
I typed 'Nivolumab' into the search bar in this group but didn't find any previous posts which mentioned it. However, if you search in the oesophageal cancer group, which I can see you're a member of, you'll find quite a few posts from people who are having this treatment. You could have a read through those and reply to any of the posters who you think might be able to help you further.
Wishing you all the best with your ongoing treatment
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
