Hi newbie here

Hi Josw

It is a rollercoaster ride isn't it?

I was diagnosed on the 30th March and started treatment on the 10th April this year - absolutely breathtaking!

This forum is chockablock with sooo many peeps that have gone thru the same thing, many who were given a very short prognosis (we call it the "Sell By date") that they have outlived by years - treatment has progressed an amazing amount in the last few years so this is THE place to tap into all of that experience, knowledge & support.

OR... if it's all getting a bit much, this is also THE place to let off a little steam (or you can use "The Room" which was specifically designed for rants and rages), it sometimes helps to let go of things to people that have had or are having the same crazy ride... And that way you don't have to burden your family or friends.

May I ask, what stage are you at and what treatment have you been prescribed? (obvs - you don't have to respond...)

Stay Strong

SiT

Hi SiT

Thank you for your reply I haven’t started treatment yet I have my pet scan Tuesday then my biopsy on the 12th

your treatment started very quickly I thought my journey was fast, just finding my way around the forum so all new to me 

Hi Josw, and a very warm Welcome to the group. A rollercoaster is the best description. The early days are the worst, but it does get easier. Once you have a plan of action, and your treatment starts, you will start to find your feet again, and things will settle down. Good luck with the PET scan, and biopsy. Many knowledgeable people in this group, all on different treatments, but always someone here for advice or a chat. 

Hi Josw

Then all I can say at this point is to try not to work yourself up into a state (very easily done let me tell you...). I took the position that I could not do anything until I knew what was what etc...

It is important that you wait for the results before going off on a tangent.

DO take the time to write down any questions/concerns you may have so that when you have had the ebus/biopsy/scan and you speak with your onc (oncologist) and CNS (cancer nurse specialist), then you will be able to engage and plan your treatment.

As you are new on here, if you want to know more about the person posting, then you should click on the icon next to the username. Many of us have written a bio of our journey to date... (although Many have not...). Try mine which has recently been updated with my 6 month results.

Please do come back on when you have your results and tap into the incredible amount of experience on this site, share your worries and ask any questions (ANY questions...) - the people on here are very, very generous with support etc...

Anyway, let us know and in the meantime...

Stay Strong (and calm, if at all possible)

SiT

Thank you 

Hi SoT it’s strange I actually feel quite calm about it all! I am having the roller coaster but not in a panicky way what did set me a little of course was the announcement of lockdown that my appointments etc would be cancelled but I think they won’t be fingers crossed 

i have listened to the advice and kept on top of the painkillers which has really helped with my breathing which makes life easier 

Hi J

I get what you say - my stuff all began on the morning of the second week of lockdown in March and my treatment was actually much quicker than one might reasonably expect although being told my initial prognosis almost certainly explains why...

Good luck tomorrow

Stay Strong

SiT

My pet scan was cancelled as batch was wrong today so back in tomorrow fingers crossed it will be ok

CT's are really easy - over in a flash! Just try to keep as still as poss...

& don't worry, you should get your results relatively quickly afterwards

Best

SiT

Hi Josw

welcome to the group that we would all prefer not to be in but is invaluable to us all.

the friendship, support and advice in this group is worth so much. 
hope all goes well and keep in touch