Two days on ...

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Hi there, I was diagnosed two days ago, and have already chosen lobectomy surgery.... So at least I've got the ball rolling. Problem is, this feels like it's happening to somebody else. Weird. I'm worrying about being unable to do Xmas shopping! 

Although I've been calm and unworried (can't change the outcome!) during all tests and scans, suddenly I feel all wobbly and strange, such that normal life (which needs to continue for a few weeks) is feeling difficult. Guess this this normal, maybe even shock? 

Rana 

  • Hi  

    welcome to the group but I am sorry you have had to join us here. Everything you have described is normal. When I was diagnosed, I too felt like it was happening to somebody else, and I was watching, it was very odd. I don’t think anyone can know the stress and anxiety from a diagnosis, unless you experience it yourself. It can make you feel very unwell, and make you question what is going on with your own body. This will calm down in time, and you learn to live with your new normal. 

    The people here in this group will know what you are going through, so do please come and share your thoughts and feelings. You can also call the MacMillan support line on 0808 808 00 00. They are available 7 days a week from 8am until 8pm. 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

    Community Champion badge
  • I know exactly how you feel , I was just the same. I worried about all kinds of things, some serious, some strange.

    However, having been diagnosed, you might not think so right now but there is one piece of good news that you have already received - that you have been offered surgery. This gives you a an excellent chance of the best possible outcome - a cure.

    I was diagnosed over 12 years ago in early 2014 and had surgery to remove my right lung. I'm still alive and very much kicking having been completely lung cancer free up to now.

    I wish you all the very best for a similar result,

    Derek.

    Made in 1956. Tested to destruction.

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    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Well I'm comforted to hear this is 'normal'.  Strange days ahead... Thankyou

  • That is so encouraging to hear!

    There's a lot to get my head around, and my head wants to think about some very strange things! Thinking

  • If there's anything else you want to ask about go ahead, we'll do our best to answer.

    Derek.

    Made in 1956. Tested to destruction.

    Community Champion badge
    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Hi Rana

    Yes, it's quite normal to feel like that, who wouldn't when diagnosed with cancer.  I have had cancer twice in my life, breast cancer stage2 in 1991 and lung cancer stage1 in 2023.  Both times I just seemed to go on automatic pilot and carried on my life as normal, although in my head I felt 'off kilter' so to speak.  My "wobbly" times came on the first day of treatment for both cancers, but in a way I felt better knowing that everything that was happening was a step further in recovery.

    Regarding your thinking of Christmas shopping, I finished my treatment for lung cancer on the 15th December 2023.  Because I did not feel physically capable of trawling through crowds, I did all my Christmas shopping online, i.e. gifts etc.  Usually every Christmas Day my son hosts about 20-25 people consisting of family and friends, he does all the cooking of the Christmas dinner and I always bake large batches of various cakes, but obviously I wasn't up to it at the time and everyone understood, but the last two subsequent Christmases I was back to baking. So there is light at the end of the tunnel, and you will get back to your normal life, albeit different, once you have recovered from your surgery.

    I wish you all the very best, and good luck with your forthcoming surgery

    Ann Heart exclamation

  • Hi Rana, like you I was holding everything together and ploughing through all the tests etc.

    i had a lobectomy on Jan 7th and it wasn’t as bad as I imagined. Yes all the feelings came over me like a tidal wave, but the hospitals are brilliant.

    please feel free to ask anything

  • The imagination is a tricky chap... Especially mine at the moment! I'm reassured by 'not as bad as you thought'. Relaxed️ The hospital have been great so far, and extremely fast, which is both reassuring and terrifying. I await the tidal wave, and hope it's not too ugly, or public! Grimacing Thank you 

  • I was really lucky mine was 3cm and no further treatment, I hated it when people found out and kept saying’sorry’ I was ok I’d rather me than hubby or one of my girls.

    the op for me was quick but I was asleep haha

    you wake up and my nurse navigated me out of bed with chest drain box to the toilet.

    next day physio in showing how far they want you walking.

    do the deep breathing exercises prior to expand those lungs it all helps. I was sent home on day2 don’t worry they give lots of meds!

    Get a large nursing pillow and no bra for a while was quite liberating. Mine was keyhole and have 3 scars one goes into boob which can be annoying! 
    Wish you well hope this helps