Hiya,
4 weeks ago my mum was diagnosed with stage 4 sclc. She has mets to her lymph nodes, liver, adrenal glands and a large spinal one which has caused 3 fractured vertebrae. It’s only the back pain which began in August which led to the diagnosis.
She’s had radiotherapy to the spine as worried about cord compression and had a first cycle of carboplatin and etoposide. But she couldn’t complete the cycle due to the side effects. I see her deteriorating before my eyes and it’s breaking me. I stay strong when I’m with her. But I’m exhausted.
Mum is currently still in hospital - it’s been almost 4 weeks since admission. But I don’t know if she will be able to live independently if she does get discharged. Her mobility has been massively affected and whilst she can wash and dress herself - she can’t do thinks like prepare a meal as she needs a zimmer frame now to mobilise. Shes only 57 and it’s heart breaking.
On Wednesday she chose to sign a DNR and we are completing her Respect form today. This is just such a rollercoaster and I am struggling with all the unknowns.
I really really hate cancer
I am so sorry to hear this, your mum is so young, and I know how heartbreaking this will be for you. Mum will be getting the best care possible, but you must also take time to look after yourself. You have taken the first step by posing in the community, as you will get support here from other people who are going through a similar thing. Please do also join the Supporting someone with incurable cancer forum
where you will find other members with a similar struggle.
I wonder if you may have a maggies near you
these are usually situated near a main hospital, and are great places to pop into for a chat. You can also call the MacMillan support line on 0808 808 00 00.
Good luck for today. I know how hard this will be, my thoughts are with you.
