Hello

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Hi everyone 

I was diagnosed with lung cancer just before Christmas and had a lobectomy to remove the upper left lobe on January 14th. I am recovering well from surgery, better than I imagined I would. I am now in the position of deciding whether to have chemo, or just go with surveillance for the next 5 years. 

The surgery removed all the tumor, and didn't find any evidence of anything in my lymph nodes. PET scan before surgery didn't find any sign of mets.

I feel really well and I don't think I can face the potential side effects of 4 rounds of chemo and following immunotherapy for the very small chance of potential benefits. 

Still not decided, I have a week or 2 to consider my options.

Has anyone else been in the same position? The chemo on offer is vinorelbine and cisplatin.

  • Hello ,

    I know exactly how you feel. I had surgery to remove my right lung and was also offered adjuvant chemotherapy.

    In my case I was told it would likely add 5 percentage points to average chance of long term survival (I didn't ask what the starting point was - too scared at the time!).

    I thought about it for a short while and although I didn't like the idea decided to have it. I reasoned that I was still relatively young (58), had recently lost a couple of people close to me to lung cancer and didn't want to follow them and was petrified of my cancer coming back. My final reason was simply that it wasn't compulsory to have it so if the side effects became too bad I could stop at any time I wanted.

    So I had it and, although it wasn't the best experience in the world, I did finish it. That was in 2014 and I've been clear since. 

    I also had cisplatin and vinorelbine, immunotherapy wasn't available back then.

    I wish you all the very best whichever route you decide to take.

    Derek.

    Made in 1956. Tested to destruction.

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  • The only person that can answer this question is yourself, I had Chemotherapy because I was told that there was 50/50 of it returning elsewhere and having chemo gave me an extra 10% so I went for it but it still metastasised to my brain. That has successfully been treated with radiotherapy I was then offered immunotherapy but I refused that because I still suffer from the side effects of chemo If it pops up elsewhere I'll deal with it then. I don't regret having the chemo because if I hadn't had it I would be kicking myself thinking I could have stopped it from spreading 

  • Thank you. The battle I am having with myself is if I say no to the chemo and it comes back I will blame myself. It's not an easy one, especially as I am terrified of getting an infection while on the chemo and it turning serious. That is probably my biggest worry.