Fiance been diagnosed presumed lung cancer with spinal invasion

Hi. I'm so sorry to hear what you're going through and can totally sympathise. My partner was told 6 weeks ago that he had spinal cancer. Was sent home from a week's stay in hospital the day after his diagnosis and we had no word from anyone for 4 weeks - nothing,.no treatment plan, no follow up, no prognosis. He is on morphine for the pain, but the morphine makes him itch, so now he's also using steroids cream for the itch. Finally, 10 days ago, a nurse practitioner phoned to say the radiologist needs more time to study the images...we are still waiting. No further forward. I got the local MP involved but it doesn't seem to have helped speed things up. It's like noone cares.

Thank yiu, I'm sorry to hear that about yours too! It's awful isn't it the service is terrible... Have you had scans etc? You can ring them everyday to find out. We do and it works kos they get sick of you ringing it is so wrong. We're now left waiting again and have no way of pushing it until it's picked up, do you have children too? Xx

Hi Aimee910  I am sorry to hear about your fiancé, it must be awful to see him in so much pain. It is frustrating that he now has to wait for the biopsy, they really need this before any treatment can start. The biopsy will tell them which type of cancer it is, and which treatment is best for that type of cancer. 

What pain killers has he been given? If he is in that much pain I would speak to the GP to see if there is anything more he can have. I would also suggest you phone the macmillan support line. They are available 7 days a week from 8am until 8pm on 0808 808 00 00. 

Hi , sorry to hear this .

It is shocking to say the least,  I've been in the same situation,  waiting and waiting. Finally got a start date for treatment 12 weeks later so hopefully nothing has spread . My mental health has hit rock bottom. I hope you soon get some answers . Have you tried speaking to PALS ? When i finally got my appointment with oncologist he said another month before treatment, as waiting list , and basically tuff. Luckily I had a phone call 3 days later to book in . Also told to stay positive,  sick of hearing that , how can we . I so pray you get some answers very soon. Xxx

It really is he's becoming really unwell with the sickness too now, he's already waited a week for them to have to send him over to get asleep, It's a nightmare! 

He's on oramorph & slow relese morphine tablets, he's still struggling tho and feels if he tells the hospital they will just basically give up with him because he's getting worse 

I'm gojng to call these as I definitely need some support ort with this 

Aw that is crazy!  I'm really struggling to be fair as it is tough. Not upto now but I'm definitely looking into pals, everyone says it's a process but if it spreads in the meantime.... Would they rescan if they thought it had spread again before treatment? My partner feels they will to prolong it more

Definitely  give them a call . I'm still struggling, worried it has spread as scans were 12 wks ago xx

Hi. Waiting for MDT ( multi disciplinary team) meeting results. Had lots of scans, CT, MRI.  Think he needs a PET scan, but they seem reluctant. No, we're retired so no dependents. X

Our problem is, we are just a little tooth in a big cog wheel, waiting for the wheel to come to our turn. For some of us it just doesn't turn fast enough. 

I had my lung op' last April. Since then a pal of mine got Prostate and we lost him on Boxing day. I've just had my programmed scan and will be getting a consultation in three weeks. I'm feeling fine and more or less my normal self. But i haven't had the problems your boyfriend has had. good luck

Hi Aimee

Im so sorry to hear of your fiancé’s diagnoses. I know, it’s shocking and upsetting and you feel helpless.

My husband and family felt exactly the same. It’s not an easy ride and it’s  long one.

I myself was diagnosed with lung cancer, both lungs with spine mets and lymphangitis in January. T4 N3 M1c. My full story is in my bio and scattered about over this forum. 

It was a shock I hadn’t a clue.

I know it is a long wait but once he’s finally had a biopsy it’ll start to move a lot faster so please try not to worry. From diagnoses to starting treatment was over two months for me but I knew how long it would take to find the exact type of cancer and the exact gene mutation so that they can give you the right treatment. 

I’m sorry he’s in so much pain but they will get that under control for him. 
If he has an oncologist get a number for the lung nurses at your local hospital and I sure they’ll help him if he needs it.

I know it’s hard but all you can do is support him and reassure him as best as you can, you’ve come to the right place coming here and when you need it we’re all here to support you both. 

Sending lots of positive vibes and huge hugs  

Jools