Newly diagnosed stage 4 lung cancer

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Hi. On 12 December I was diagnosed with stage 4 lung cancer after a chest x-Ray for a cough, then a CT scan. This has blindsided me and my whole family as I have always been fit and active, working and chasing round after grandchildren. I’m a non-smoker. Christmas was a blur and I’m still struggling to get past the diagnosis five weeks later. I’m waiting for an appointment to discuss treatment but all I can focus on is that it’s stage 4 and I had no symptoms so no opportunity to fight it.  I’m so lucky with my support network but it still feels so lonely. I am focusing on the negative end results, which may change when I have more information but I’m so scared. It’s taken me 2 weeks to gain the courage to get on this group and I don’t google - too frightened. 

  • my husband is the same fit well too same it's scarey of course

    but I went straight online to get help asap with specialists and this site

    when is your appointment ? Get one soon as you can it will help more information you have

    I send you many hugs 

    xx

  • It's like learning to drive all of us have started somewhere so we try to help the newcomers. I'm just through my second surgery lung "C" this time. My first in 03 was for a bowel one. You are with friends on here Nanna so keep in touch. and stay positive we've all been there. When you get through your one you'll be able to help others who are new to it.

  • Hi Nanna B

    I’m so sorry to hear of your diagnoses, I’m in a very similar situation to you, I’ve recently, on 9th January, been diagnosed with lung cancer in both lungs and possibly on my spine amongst other things. I had no symptoms other than I was wheezing at night since I got ill on holiday in Jamaica in September/October and was slightly worried that it had gone on for a few months. I saw my doctor and was sent for an X-ray which came back with shadows on both lungs. I was fast tracked for a CT scan and days later got the devastating results. I’m quite active although I do have rheumatoid arthritis which I’ve had since my 30’s ( I’m in my early 60’s now) and it’s pretty much in remission at the moment. I spend lots of time with the grandkids and do try to do as much as possible. I like you was certainly not expecting a cancer diagnoses! I’ve not been staged yet but I know it’s not good. I have been fast tracked to the respiratory cancer team but haven't heard from them yet. It’s such a nerve wracking wait!  I also like you can only see the negatives in the diagnoses and am struggling to find any hope at all. My husband and family are struggling to take in the news, we’re all still in shock. It’s just waiting now and hoping that it’s at least manageable and I’m gearing up for the battle ahead. Just know that I’m here if you need it as are many others on here and we’ll navigate this journey together. Try not to worry ( I need to take my own advice Slight smile)

    take care, Jools 

  • My husband was diagnosed with stage 4 lung cancer 2 years ago last November? He has had 4 different types of treatment and still today his fitness levels are good? He just gets tired but after a short sleep (half an hour feels better?

    Remain positive because you need to take each day as it comes.

    Good luck and very best wishes..xxx

  • Oh my word Jools - our situations are so similar, even down to our age. It’s terrifying isn’t it - the waiting is hard but I know we’re not the only ones. I’m glad to have found this  forum to gain and, hopefully, give support when I’m further on and when the shock has llessened a bit. Keep in touch and let me know how your appointment goes. Don’t punish yourself for worrying - we’d be a bit strange if we didn’t. Take care. Nanna B

  • hello

    my husband was diagnosed last thursday with oesophagus spread to lung trying to find a good/recommended specialist in london now. 

    It was found during blood tests when he was admitted for influenca and rhinovirus over xmas

    What treatment did your husband have? It would help me to have an idea it's the unknown we are all in makes it even more scarey.  I'm glad to have found this support group.

    Big hugs

    xx

  • I'd also be interested to know more. I know every case is different but it is good to know people can and do sometimes do better than the doctors initially say. My partner has just been put on FOLFIRI (excuse the spelling?) for 3 months. The oncologist said there's only one more possible drug to try after that but didn't name it. His prognosis for her was 12-24 months. They spotted around 6 tuny tumours on each lung, of 1-2mm each. Im shocked they cant do more but trying to find some hope in a desperate situation! Best wishes to you all.

  • It is the worst time for us all we hope for the best all the time and that the doctors will find a new drug that will help and I hope that will happen.sending you love and hugs.