Hi all,
My mum has recently been diagnosed with non small cell Lung cancer. She also has COPD and Asthma. Unfortunately i have a chronic illness myself called PoTS (Postural Orthostatic Tachycardia Syndrome) and I also have Agoraphobia (fear of leaving the house) due to this. Mum has been my main support network/carer for the last year and i am finding it incredibly difficult since her diagnosis. I have so much guilt that i cant go to appointments with her. She had an ebus test on friday to see if it has spread to her lymph nodes or not. IF it has spread to no more than 1 station then she will have Chemo & immunotherapy for 2 months and then surgery after where they will remove 2/3 of her right lung. however, if it has spread to more than 1 station, then she will have chemo radiation and no surgery. My mum is my best friend and i cant imagine a world without her in it. I dont feel like i can talk to her about it too much as i dont want to scare her or to focus on the "what if's" as mum is extremely positive so i dont want to drag her down. All our family live abroad so we dont have too much of a support network around us..
Anyways, just wanted to say hi
Warm wishes,
Nats
Hi Nahala7 welcome to the group but sorry you find yourself here. These next few weeks are going to be very hard for you and mum. Being a mum myself I know that your mum is going to be worrying about how this will effect you just as much as herself.
If either of you need to talk to someone about your situation, the free macmillan support line is available 7 days a week from 8am until 8pm on 0808 808 00 00.
Good luck to your mum with the test results. Let us know how she gets on.
Oh Nats that is sad, ive been diagnosed with stage 4 lung cancer in both lungs and it came as a complete shock as a lifelong non smoker. Does the hospital your mum is attached to have chaperones? Are there volunteers that are able to take her to appointments and maybe stay with her? It must be incredibly scarey for you not being able to go out.
I do wish her alll the very best and hope it hasnt spread.
Kind Regards
Hi I,m new here today my husband was diagnosed with stage 4 NSCLC march he has been having chemo and immunotherapy and had a good response so far it’s been such a roller coaster of emotions, I lost my mum in April I was her carer she had dementia I also lost my dad to dementia last year , The oncologist has said it would be ok for a holiday to Spain I,m looking for advise re holiday insurance.
sending moments of peace to you all x
So just an update.. Mums EBUS test came back "non diagnostic" - she now has to have ANOTHER PET scan and another CT so that they can decide if its in the lymph nodes or not.... so that will be another 2 weeks before we have any answers.. this whole journey started with her first scan on April 1st.. we are now nearly 3 months on without treatment, meanwhile the tumor has nearly soubled in size.. I cant help but be annoyed at the system for it all taking so long.. I remember the days when a cancer patient HAD to start treatment within 2 weeks of seeing a consultant... gone are those days unfortunately... sorry about the rant..
Hope everyone is doing as well as they can be!
Warm regards,
Nats
I am so sorry to hear this. The awful truth is our nhs cannot cope. Cancer care is not what it was. My own step mother has been diagnosed with ovarian cancer, after more than 12 months of going to the gp and A&E for pain, and being told it was constipation.
Hope your mum gets the tests she needs soon.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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