3 year anniversary - stage 4 EFGR Lung Cancer diagnosis.

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I just wanted to post something positive on here that I hope will help newly diagnosed Lung Cancer Patients and those currently receiving ongoing treatment.

This month will be the third anniversary of my Stage 4 Lung Cancer diagnosis. My cancer had already spread to my Spine, Sternum and Rib before my diagnosis. Having been a lifelong non smoker it came as a complete shock and my world was turned upside down in an instant.

The type of cancer I have is called EFGR and the treatment I am on is in the form of a chemo tablet taken once a day called Isomertinib, which I will take for life. 

I have been very fortunate not to have experienced any bad side effects to the treatment. I have two appointments at the hospital per month, the first for a blood test followed by one the following day to collect my next round of tablets, all being well with the blood results.

I never imagined after my diagnosis that I would still be here 3 years on and living a near normal life. I appreciate my experience is very different from others who have had or are undergoing general chemotherapy but I just wanted to share something positive, especially for those who have been recently diagnosed with EGFR type lung cancer.

We are all on our own journey but not alone. Don’t be afraid to reach out for help if you need it. Stay positive x

  • Hi NannyH Thank you for posting as that is enlightening and gives hope All the Best Regards minmax

  • Hi Nanny H thanks for posting as it gives us newly diagnosed much optimism,I’m waiting for my results to come back but I know I’ve got some kind off lung cancer as she showed me after breathing tests as I ha x rays and ct scan with dye before that,and biopsy’s ,I’ve been on HT since April as have prostate cancer as well but was caught early so their leaving that until they deal with this cancer 

  • Hi Robert. I’m glad to hear my post has been of some help to you. Wishing you all the very best with your lung test results and your ongoing treatment for prostate cancer. 
    I received a bowel cancer diagnosis 10 months into my treatment that was unrelated to my lung cancer. I had to stop taking the drug I’m on for 8 weeks before they could operate to remove it, to build up my immune system….that was scary! But here I am, over 2 years later with no bowel cancer and trying to live the best life I can, for however long I have left. 
    Even when things seem so bleak, there’s still hope. 

  • Thanks for replying,going down on Friday for test results out walking at the moment Thumbsup

  • Hi All its lovely to read positive news about treatment we are receiving and I feel so lucky to being treated , As a mate pointed out , The NHS can't afford to let me die as they have spent so much money on me already lol All the best minmax 

  • Hi Robert I find walking is probably one of the best things one can do to try and stay healthy and great for the mind also All the best minmax