Hi, I haven't posted before.
Has anyone experience of lung cancer not as a tumour, but in the fluid in the lung? My wife started to have breathing difficulties in September and an x-ray showed fluid in the lung. By the time she was referred to hospital the lung was fillled with fluid and had collapsed and she spent a week having the fluid drained. There was only an improvement for a few days afterwards and she was readmitted to hospital where fluid round the heart and blood clots were detected by CT scan. After a difficult procedure to remove the fluid under local anaesthetic wasn't really successful she had major surgery to remove the fluid and put a window in the heart sac.
She seemed to improve post surgery in intensive care for 2 days, but then became rapidly worse and died just over a week later at the start of November. We're totally shocked and don't really understand the speed of the whole thing. She never got to the stage of having any cancer treatment at all. We haven't really been given an explanation from the medical staff of what happened. She'd had no symptoms before August/September and had never smoked.
Has anyone else experienced something similar? She had treatment for early stage breast cancer earlier in the year, but that was only pre-cancerous DCIS, was treated with surgery and radiotherapy successfully and didn't seem to be related to the lung cancer.
So sorry to hear this , best wishes to you and your family
Hopefully someone comes on who knows a bit more for you
Diana.
Pc56 I am so sorry to hear about your dear wife.
In comparison to your wife, I am a non smoker but I had breast cancer in 2005, stage 1, had a mastectomy and tamoxifen but nothing more. Fast forward to 2023 and I experienced breathlessness and wheezing. After so many tests and treatments, I was sent for a chest xray and had fluid taken from my pleural area. This was tested and was confirmed as breast cancer cells, same histology as my previous cancer.
i add that I have no breast tumours, no lumps, bumps, just this cancerous fluid around my lungs, CT now shows some small cell tumours which they think may be the cancer moving and developing in the lung.
I have been hospitalised already with sepsis which knocked me for six and I now have immunotherapy drugs.
All cancers are different. The way the oncologist described my cancer was a bit like a dandelion when the wind blows the little spores can spread around sometimes without detection. For me the liquid near my lungs meant I had symptoms but many cancers run amok without symptoms so are largely left to do their thing.
It might benefit you to speak to a breast care nurse or MacMillan Nurse to help you to understand what happened. I know how very important it is to have your questions answered at times like these.
Christmas must have been extremely difficult for you and so I send my best wishes that you find some peace in the coming year.
Feel free to reach out to me if I can help you with anything.
Bassy1969 Thank you so much for replying.
I'm really sorry to hear what you have been going through. It must be very difficult to deal with. I can imagine the tests and treatments you had to undergo. The draining of pleural fluid is a tough process in itself.
I do hope that the immunotherapy is effective and that you get some relief from the symptoms very soon.
I'll try the MacMillan lung cancer nurses again, that's a good suggestion.
Best wishes.
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