Scared newbie

  • 14 replies
  • 169 subscribers
  • 1107 views

I was poorly all over November and December with a terrible cough and flu like symptoms. Contacted the Dr's numerous times x rays show pneumonia. A and e visit as in agony on right side, 2nd xray was worse antibiotics not working. CT scan the following day to be told 28th Dec I have a large mass lung cancer. Well to say my world ended is probably an unbderstatment. I have had an mri, just waiting on pet which is next Friday, biopsy Monday praying for answers by the 19th. I'm obviously really struggling to sleep, 14 hours in 5 days, I can't switch off. I have an amazing amount of love and support and I am extremely lucky. But I'm absolutely devastated. I can't be alone as I'm a worrier and overthink everything. I honestly feel like I'm just living in a nightmare. I've come here as I am wanting to speak and gain advise from people in the same situation as me xxx

  • Dear Rubyjean

    Your fears and thoughts are something we very much all share, completely relatable.

    My time frame was PET scan Aug 26th.  Upper left lobectomy on 7th Nov. (10 wks).  Post-op pathology showed cancer had spread to one lymph node.  For that reason I am being offered adjuvant chemotherapy, which will start in the next week or so.

    You've done well to get onto the forum earlier than later.

    I'm really new, been here a week only.  Sending you all the best for a good recovery. 

  • Thanks for reply and again good luck yourself. Ita nice to have someone to talk to and discuss things and I really appreciate it xxx

  • Hi my journey started in. Feb . Incidental finding after a ct scan for pancreatitis .  Diagnosed Stage 2 , surgery  in May jumped to stage 3 after biopsy .   Chemo August-nov  got a clear scan in November . Now on surveillance .   Going on what they have done for you so far they are moving fast .  They should have assigned you a lung nurse that comes into your appointments with you , you should be able to contact them when you want to if you have questions or want to chase anything .   I stayed off Google and listened to my oncologist .  I took advantage of counselling that my  work offered and was able to use them as an outlet for all  tge crazy thoughts , what ifs .  ( my husband was in denial until June when I got results from surgery biopsy ) . If you don’t already have one create a coffee morning routine with friends or family it takes you away from everything . I hope your results are negative , if not lung cancer isn’t what it used to be. They now check for mutations  which means different drugs are available,  Immunotherapy , targeted therapy my step dad  had it 16 years ago his choice was chemo and radiotherapy.  You can do this please reach out day or night  if you want to chat . Reach out to MacMillan in your hospital they ran a session on what to expect and who to go to for help .  

  • Thankyou for taking the time to reply to me. I appreciate it xx

  • Keep thinking positively l was diagnosed with stage 4 lung cancer which has spread to my spine, ribbs and lymph nodes almost 4 years ago which I managed to get rid of with great treatment from my oncologist and McMillan nurses. I am now under Christie's as I ve had a small reoccurrence which is being dealt with by a new targeted therapy.  All I can say is stay positive do some yoga eat healthy food and don't treat it like a death sentence I was given 6 months almost 4 years ago. Hope this helps.

  • Wow goldenangel you are really doing great, I'm so glad. I'm glad you have shared as I said you need a bit of hope and that will see you through. I am now under Christies and have everything crossed xx

  • Glad to help we all need hope and positivity keep me updated on how everything goes xx

  • I will do, how are you doing ? Have you heard back from Christies ? Hope your OK xx