Feeling in no man’s land

• Hi Deli. Sorry you find yourself here as your dad is unwell. Please click on my profile photo & read my story. I’ve been in chronic pain for years & on opiates for years, have COPD but have had half my left lung removed & having chemotherapy now. Please stay positive as there are a lot of different treatments out there now. Julie

Hi, April1962 

I have read your journey so far. Thank you for sharing it. It feels reassuring that this doesn’t have to be a death sentence for my dad. It does also seem like the NHS are quite prompt in dealing with cancer referrals and are making it as a priority.

How did you feel when you had the X-ray but we’re waiting for the specifics from the CT and biopsy? I think it’s the not knowing that I am struggling with. I must say though that being here is comforting and reassuring, hearing other people’s stories and experiences. It’s helping me to think that it doesn’t necessarily have to be the worst case scenario for my dad. I am just hoping they caught it early.

I have read about the early detection for lung cancer and the screening they have started to roll out across the UK. Did you not have any symptoms before having the X-ray and was it purely just a routine?

Hi Deli. I had no symptoms at all & just received a text message which I did think about for a couple of weeks to be honest offering me a free lung scan. I wasn’t sure if it was real or not but was. The waiting is the worse definitely. Once you get an answer then your dad can start treatment & it does become easier. Treatments have come along way over the few years so please stay positive Julie 

Hello DELI, I can only echo April1962's comments that it is important (although difficult)  to stay positive whilst investigations are being done. There are indeed a lot of treatments available, many more since my lung cancer was diagnosed over 9 years ago now. 

The waiting is very difficult but you can get through it with positivity.

Hi Excavator, thank you for reaching out. This forum has been very helpful. I had a call this morning from the lung cancer nurse at the hospital with my dad's CT results. He was scanned Monday morning. They have found a malignant tumour in the right upper lobe of the lung with some nodules in the right upper lobe. They have also said that my dad's lymph nodes appear swollen but that from the CT of the chest and abdomen, it does not appear that the cancer is anywhere else. They are having an MDT on Friday and my dad and I will be discussing his treatment options next Wednesday with the Respiratory doctor. It appears we are on this rollercoaster now and have to stay for the ride. I am feeling positive that it appears to be contained to one area and not spread and hopeful that they can provide treatment that will get rid of it altogether!!

Hello DELI, I'm pleased to see that the first information you have certainly looks positive, that's a good start and I hope it continues.