Advice Living in America with a Loved One Diagnosed with Lung Cancer in UK

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Morning, or should I say afternoon to everyone in the UK,

My wife (who is British) and I (American) live in the US, but her parents who are both English live just outside of Peterborough. At the beginning of this year her father (78) was diagnosed with Lung Cancer and immediately received a round each of Chemotherapy as well as Radiation, spaced out of course. Over the past 6 weeks we've been waiting for his most recent scan to only find out that the tumor has grown in size. They were coming to the States for Christmas to visit their grandchildren and if he goes through more chemo, probably won't be physically capable of a long journey, nor will his immune system be strong enough to endure all the potential viral germs going around. Furthermore his oncologist seems to be tired, worn down, and has lost any kind of motivation and empathy due to the nature of her work environment. And her attitude has seem to spread to my in-laws.

But we haven't lost all hope, because I feel as though there are avenues we have not yet explored. SO because I am completely unfamiliar to the NHS, or resources readily available to anything Health/Wellness in the UK, I am asking if anyone ANYONE at all has any suggestions on what we can do?

  • Are there any IMMUNOTHERAPY clinics or trials available and if so, who are they, where are they and how do we contact them?
  • Are there any resources we haven't yet tapped within the UK? Whether public or private?
  • Does anyone know if it's possible to travel to CA for treatment being part of the commonwealth? Is that even a thing?
  • Is there an oncologist that you or your loved ones have had before that could help answer questions like these or see new patients in England?

I feel like my father in law at this point just wants to give up and I am determined to find some way of bringing not only hope but a solution to him. We feel completely helpless being so far away and would take any consultative resources or suggestions that ANY may have. 

  • Hello, I was diagnosed with small cell lung cancer in April and began intensive chemo and radiation simultaneously in May. The end of July u finished my treatment had a contrast CT scan done early this month and apparently the cancer is gone. The regiment was brutal. but worked. I had to be very cautious about being around anyone and travel was nixed. You didn't say where you are in the States. I'm in Florida and I know there are many wonderful immunotherapy hospitals and also proton therapy treatment centers.  . MD Anderson and Shands have excellent cancer treatments. HCA North Florida does too. When I was being treated for breast cancer at the Proton Center there were people going in from all over the world for treatment.   Call the nearest medical training center to you in laws and see what direction they point you towards. My own treatment was done through the Veterans Administration. Good luck!Mira

  • Hi Mira, I'm so so glad to hear that your treatments worked! I don't think I made it very clear, but my father-in-law who has cancer lives in the UK and doesn't know what to do as it appears his NHS oncologist has given up. Any suggestions for the UK? 

    Thanks again!

  • Hi mavpatUS

     Sorry to hear that your father in law is having problems. I personally wouldn't have thought that his oncologist has just given up? There's a large team normally involved..doctor,nurses,macmillan nurses etc,plenty of help and advice from all of those. I know the nhs is struggling atm but the staff are superb, honestly. Maybe his oncologist is having some personal issues, but they don't just give up,anyone who's involved with all this would tell u the same. There's helplines,emergency teams just a phone call away. Don't give up tell him 

  • Hello there,

    Firstly I would suggest you ask his wife/partner if he has been allocated a cancer nurse? If so, get his/her permission to talk to them. I have one daughter in New Zealand and I made arrangements for her to be able to email my cancer nurse. The medical staff here in the UK are usually very much on the ball. There are numbers of trials going on all the time and suitable people are usually put forward.

    others here may have other suggestions for you. I hope you manage to find out exactly what is happening.

  • Hi  welcome to the group, but sorry to hear about your father in law. It must be extremely difficult for you and your wife, supporting him from such a distance. I don’t know how many rounds of chemo or radiotherapy your father in law has had, but 6 weeks is very soon to get any real results from radiotherapy. Radiotherapy does not work instantly, it builds up in your body for weeks sometimes months after treatment has finished, so a true scan result would not be possible for at least 3 months.

    I am really very concerned that you feel that your father in laws oncologist has given up! Have you seen any evidence that this is the case? I have only ever known any oncologist to have the very best intentions for their patients, whether this is to extend their life for as long as possible, or give their patient the best quality of life to be able to enjoy what time they have left. NHS oncologists are passionate about their work, and if your father in law was to go private, he would probably come across the same oncologist.

    Your father in law can ask to see a different oncologist if he is not getting on with his current consultant. He can discuss this with his oncologist, or his GP if he prefers. 

    Although immunotherapy is a wonderful treatment, it is not a suitable treatment for all cancer types. Has your father in law shared his consultation letters with you, so you can see what type of cancer and what stage he is? 

    Chelle 

    Try to be a rainbow,in somebody else's cloud
    Maya Angelou

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