Hello, finding it all a bit much to deal with......

  • 14 replies
  • 172 subscribers
  • 1160 views

Hi Everyone,

I am new here but have been reading a few peoples journeys

Here is my Journey so far...

I went to the docs for heart issues and was sent for scan, it was whilst undergoing a CT scan that they found a mass in my lung. From then on it really seemed that my feet did not hit the ground. I was sent for a pet scan, then a biopsy, it was then I was told I had small cell lung cancer. I guess you always hope it will not be cancer but reality takes over. I found it very hard to come to terms with

One of the hardest things i found is informing your family of your diagnosis, I have a wife and 4 children with 5 grandchildren.

I am on chemotherapy and have just had my third cycle, I seem to get different side effects from each cycle, from hail loss to peeling hands and feet. However this time it is really taking its toll on me, I feel breathless, fatigued and very emotional. I understand this could be the accumulation of drugs in my body, I must admit I am finding very hard to cope with.

After my 4th cycle at the end of the month I will be sent for a scan to see if more chemo will be necessary (hoping not) or the possibility of radiotherapy which they want to keep to a minimum as I have Pulmonary Fibrosis and they do not want to exacerbate this.

I send everyone my best wishes with their own personal journeys

Steven

  • Hi Steven

    So very sorry that you have cause to be on here.

    The positive is that SCLC generally responds well to chemo in terms of shrinking the tumour, The down side is that the side effects of chemo (or any cancer treatment) are cumulative.

    Have you had a recent blood test; from personal experience  these latest side effects do suggest that your red blood cell count? may have dropped?  Have a chat with your cancer team about these latest side effects.

    I wish you the best possible outcomes.

    Kegsy x

    "If you are going through hell, keep going" ; Sir Winston Churchill
    " Cancer may take my life; however it will not become my life" Kegsy August 2011
  • Thank you Kegsy

    I shall get in touch with my LCNS and talk about my symptoms

    Liking the quotes, Very apt

  • Hi Steven

    Sorry to hear your news, I went for an X-ray for a pain in my back and they found a large oval mass on my lung, needless to say I was devastated, I found out in June I have stage 4 lung cancer. I am getting immunotherapy every 3 weeks. I am a bit breathless with some things I do and I have a lot of leg pain, every day seems like a chore at the minute, but like you say I’m not sure if it’s the treatment or painkiller’s. Hopefully you feel a bit better soon.

  • Hi Steven ,so sorry you find yourself here ,but everyone does try to help ,When i was given my diagnosis last year ,i to was devastated ,and at first i did not know how to tell my children ,sister/brother etc ,but i kept telling myself i was lucky that they found my nodule while it was small ,and though a lobectomy is not the easiest way to remove it ,it was the one thing that gave me the result i wanted .yours is different from what i can read ,i have read a lot of good outcomes on here with chemotherapy ,and a lot of side effects can be debilatating ,the best advice is to listen to the people who know ,people on here who have been through the same as you and of course listen to your medical team ,here is hoping for the best of outcomes for you

  • Hi Steven

    Forgot to mention your very dry skin on hands/feet.  When I started my chemo, one of the nurses in the chemo unit recommended Utterly Smooth with Urea cream. It is used a lot by people going the through chemo. If you fancy giving it a try just Google Utterly Smooth and go to their website. They even have an Oncology Care Pack.

    Hope this helps a little bit.

    Kegsy x

    "If you are going through hell, keep going" ; Sir Winston Churchill
    " Cancer may take my life; however it will not become my life" Kegsy August 2011
  • Thank you, for the response, i do listen to my medical team and try my best to keep on top of my thoughts and fears although this can be difficult at times

  • Hi, i was in touch with my LCNS today and they have advised me to take things a little easier and to not push myself to far they will call again friday to see if things have improved

  • Thank you for your reply, I hope your treatment goes well, as for me immunotherapy was not on the table, I know i have at least one more cycle of chemo. I wish you well

  • I'm sorry to read about your side effects, especially the hand-foot syndrome which is really nasty (I developed it from chemo for a different cancer and they had to stop one of the drugs).

    Always contact your team about side effects as soon as possible.  Don't wait until your next appointment.

    Does your chemo include any steroids?  Those alone can play havoc with your mood.