How do you deal with it?

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Hi

Apologies in advance if im on the wrong forum for this or it's too blunt. 

My husband has advanced SCLC. He was diagnosed nearly 2 years ago. He is responding very well to Immunotherapy and is not suffering any symptoms or side effects. 
Everything I read online tells me my husband is dying. Everything I hear from the hospital and see with my own eyes tells me he's going to live for years yet.

I can cope with one reality or the other but not both at the same time. How do other people cope? 

Thanks. 

  • It’s tough isn’t it. I’m in a different category. I was bowel cancer no spread. Op then stoma then reversal then blockage then one year scan. Lung cancer. 
    Your not too blunt and this forum is fine. There’s also a carers forum if you feel that may help 

    I think of myself as in a game of whack a mole. I’m the bloody mole and that cancer mallet is up there trying to get me.
    I keep ducking and diving.
    Some days are great others I hibernate but I try to make the most of it  

    My husband had a  Parkinson’s diagnosis’s six weeks after my major surgery. So with that one I have to make the most as that’s an evil devil and tends to keep bloody moving.
    There’s no ducking and diving. so we go out when we can and enjoy as much as we can. 
    Try and do things you enjoy and keep that mallet up high. 
    we do little things and have a laugh as much as possible 

    Keep talking if it helps 

    Ann
     ‍Art

  • Hi Pushkin , I was diagnosed with NSCLC stage 1b 5 months ago and  had a lobectomy in April , since then I have been told I now have  stage 4 secondry cancer in my lymph nodes and in my pleura.  I am about to have 2nd lot of Chemo and Immunotherapy,  I know my prognosis is not good Neutral face.

    I am only getting 4 goes at chemo . I am Palliative/disease control . Diana.

  • Hi   this is the problem with Google, it is extremely out dated! If I was to listen to google I shouldn’t be here now. Lung cancer treatment has come such a long way in recent years, especially with immunotherapy. Please stop googling, and start listening to the medical professionals. They are the only ones that know exactly how your husband is doing, not outdated data on the internet. Once you stop googling, I promise you will feel much better. 

    Chelle 

    Try to be a rainbow,in somebody else's cloud
    Maya Angelou

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  • Thank you so much for your responses. It's comforting to feel acknowledged.

    Thanks especially for the advice about researching online - you're right, very few things seem to refer to Immunotherapy results so there's little to be learned.

    Thanks again folks, good luck to all of us and keep dodging the mallet.

    P.

  • Hi Pushkin

    August 2011 I was diagnosed with SCLC, which was limited to one lung even though it had spread across that lung.  This was in the pre-immunotherapy era, so my treatment was chemo alongside high dose radiotherapy.  

    In the subsequent 12 years I have led a full life, even in 2015 adopting a rescue dog from the RSPCA (he is asleep on my lap as I type this).

    My attitude is that it is not my job to worry about whether the cancer will return; my highly trained/experienced cancer specialists are paid to do that.  My job is to make sure I live the life I want to live.

    Cancer or no cancer, none of us know what life has in store for us, all we can do is make the most  of the life we have.

    I hope this helps a little bit. 

    Kegsy x

    "If you are going through hell, keep going" ; Sir Winston Churchill
    " Cancer may take my life; however it will not become my life" Kegsy August 2011