Hello - just joined!

1 reply
165 subscribers
423 views

My husband was diagnosed with advanced Stage 4 adenocarcinoma of the lung last September and has been on Osimertinib. It has been a real rollercoaster of a ride, with many setbacks, the latest being both of us getting Covid. The results of his sometimes on-off treatment are mixed so far, with some small signs of improvement on scans, but he still feels dreadful and gets quite disheartened, especially with the setback from Covid and suspension of treatment yet again. His biggest struggle is food. He has coped with other side effects like mouth ulcers and fatigue. Any tips welcome!

sistermoon over 1 year ago

Hi KC24

I am sorry to hear about your husband's diagnosis and set backs. I can empathise with this to some degree as for a while it seemed that the only news I was getting was bad news. I'm sorry to hear you've both had COVID, this on top of everything else is sometimes too much to bear.

If you would like more support for yourself, there is a carers group, this is the link to it Carers only forum

I didn't have mouth ulcers when I had chemo but the nurses gave me corsodyl mouthwash. Fatigue is a hard one to overcome as it doesn't relent no matter how much sleep or rest you've had. It may be worth asking your husband's CNS or the treatment team for advice. Macmillan also have an ask an expert or speak to a nurse service that may be able to help. This is the link https://www.macmillan.org.uk/about-us/contact-us

I hope things are looking up for you both soon and that his treatment resumes. Best regards,

A x

More from this forum

Hello - just joined!